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Liver transplant - Let's support each other

Transplants | Last Active: 3 days ago | Replies (1554)

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@craiger

Yes I am and I think I will need one very soon..I have NASH and wanted to ask a few quistians.

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Replies to "Yes I am and I think I will need one very soon..I have NASH and wanted..."

@craiger, the first step is is diagnosed liver disease. Next, a federal from your primary doctor to a liver transplant seorgon. Your medical insurance should have a list of heptologists that will be able to refer you for liver transplant evaluation. If you would like more information about a transplant evaluation I recommend calling Cedar Sinai Comprehensive liver transplant center in West Los Angeles. I assume you are in the LA area. Mayo Clinic seems to be a good choice as well as UCLA, and USC Transplant centers. I know of people that have had transplant at all the above centers. Above all you need to know what your MELD score is. I was inter hospital transferred to CS at MELD 40. I was very ill and I was given the first transplant intensive care bed that was available at the time. Dr.Nissin was my liver Surgeon. Dr. Sean Cao I was my liver specialist. Cedar Sinai and Fountain Valley in that order. Be well, Tim

@craiger My cirrhosis was from NASH. I don’t recall any shoulder pain, but the symptoms I did have were declining platelet counts, shaky hands, HE episodes, being always cold, and terrible cramps, primarily in my thighs.

Please feel free to ask me anything. If you include the @ sign, followed by my Connect name (contentandwell). It will go to everyone but it will specifically let me know that I was mentioned.
JK

@craiger, I would like to jump in here and add some information about NASH from NASH Patients: Blog Round-Up. These posts are relevant to patients, or caregivers of patients, with nonalcoholic fatty liver disease, also known as nonalcoholic steatohepatitis.
https://connect.mayoclinic.org/page/transplant/newsfeed-post/nash-patients-blog-round-up/

On Connect, your questions are always welcome. I am happy to see that you have already met some expert member patients.

@craiger, You have mentioned some right shoulder pain. I remember when I have had liver biopsies, that I was told that I might have some shoulder pain called referred pain. In my situation, I would call it a temporary nuisance that was relieved with tylenol for a couple of days.
Have you found any relief for your pain? What have the doctors told you about it?