Liver transplant - Let's support each other

@gaylea1 Oh my goodness, you have been through some nightmares. I hope your upcoming procedure is less painful. I can understand your apprehension. I have been very fortunate in not having any post-transplant problems.

@joanaiken I never got the to coma stage with my HE episodes but I remember clearly one where I was sitting on the sofa and completely uncommunicative. It was like watching things going on outside and beyond me. My husband called our friends over, he is a doctor, and he told my husband to call an ambulance. I was basically catatonic. Such scary stuff.
JK

Just please tell them that you have issues with versed. This is what they typically to use. It is "consciese sedation" which means you will be awake but you won't remember anything. I always go full sedation with propophol. They don't like to do that because you an anesthesiologist, but it makes it far more comfortable.

While I have never had an ERCP, I have had many EGDs to have varices banded. They do them under Verced, but I never tolerated it well so I was put completely under with Propophol. Never a problem after that.

I have had ERCP's at 3 different locations. And each time I was given an IV sedation. Propofol is the name that stands out in my mind. However whatever I had for my early ones at 1st location left me feeling nauseous the entire next day.
Always, it was my doctor and anesthesist who had the final say in how I would be sedated.
@gaylea1, I hope you have a better experience this time.

As I understand it, during an ERCP they can look at bile ducts and pancreatic ducts in a retrograde fashion from the duodenum. In an EGD, the duodenum is visualized, but the main thing they look at is all of our varies and see if any are bleeding. If you have more info or different info, I am open to all advice. I guess like many, I’m just praying to be put on a list. I’m already past that point but no one is receiving proper care where I’m at.

Ohhhh. So sorry. I hope this upcoming one goes more smoothly.

@joanaiken what they told me that when an ERCP is done there is always a chance of the disturbment or movement against the pancreas which can lead to the pancreatitis. It's not infection it is a physical act which disrupts the pancreas. As I'm have a bile duct stent removed ( or replaced) the chance of this is very high.

EGD = esophagogastricduodenoscopy. ERCP= endoscopic retrograde cholangiopancreatogram EGD is more for looking at the esophagus, stomach and duodenum. I had multiples of these when I had bleeding esophageal varices. This is more of an upper GI exam. The ERCP goes down further and can look at the liver, gallbladder, and bile ducts. The first year IS quite the ride as your new organ settles in and your docs find the right combination of meds. Sorry about the need for strong pain meds. Maybe write down all of your concerns prior to the procedure and discuss with the transplant team.

Sending you positive vibes and healing thoughts. I now have an ERCP scheduled for March 18th. I wonder if antibiotics would help you ?

That sounds like a good precautionary measure to prescribe antibiotics. I never was post ERCP, but I did not have as many in that period of time.