Liver disease itching: What helps?

Posted by jeanne5009 @jeanne5009, Nov 26, 2018

Does anyone have info or treatments for itching? My scalp and lower back have a very itchy rash. Tried ointment shampoo, antihistamine and steroids...wont go away. I am Stage 4 liver cirrhosis. Dermatologist and PVP are stumped.

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@skolotilin

My doctor prescribed Cholestyramine 2X/day for extreme back and abdomenal itching. At night when my feet and legs itch, I take hydroOXYmine PAM. Together they have helped a lot. I went to dermatologist too, but she the prescribed creams that did nothing. For reference, I was diagnosed with Cirrhosis 2 years ago and have no further symptoms since then. If you get the cholestyramine, I suggest you take it with OJ (it's a powder). Good luck!

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Hi, @skolotilin. When I had to take Cholestyramine with my itching with liver failure I think that I put it in orange juice, too.
Do you still take it? or need the lotions?

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My doctor prescribed Cholestyramine 2X/day for extreme back and abdomenal itching. At night when my feet and legs itch, I take hydroOXYmine PAM. Together they have helped a lot. I went to dermatologist too, but she the prescribed creams that did nothing. For reference, I was diagnosed with Cirrhosis 2 years ago and have no further symptoms since then. If you get the cholestyramine, I suggest you take it with OJ (it's a powder). Good luck!

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I am a nurse and I have experience in herbal medicine for more than 15 years

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In reply to @melhem "Yes. I have" + (show)
@melhem

Yes. I have

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@melhem, I see that you are a new member and I want to extend a Welcome to Mayo Clinic Connect.
What brings you to this discussion about liver disease itching? Would you care to share some information about yourself so that I can better communicate with you?

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@gaylea1

@rosemarya Hello. It is cool here but the crocus are poking through.
I am starting to eat more solids without pain. Tastebuds are still way out of whack and certain food textures (like bread) are still compromised. I am moving April 1st so I've been pàcking boxes to keep busy.
I do have a question though. What are your thoughts on swimming in public/private pools, oceans and lakes? I'm concerned about bacteria in the water.

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@gaylea1, I am going to make a nonmedical guess that when your bile duct issues are resolved, your taste will return to normal. I have my fingers crossed🤞.

As far as swimming etc, here is what I found in a handout after my transplant about Infection Prevention after Transplant. It is a typed page, and there is no quoted source. Here is what it says about water:
-Avoid use of hot tubs, especially public ones. Swimming in pools or the ocean is okay as long a you do not have any open cuts or sores. Do not swallow the water. Wear water shoes or sandals when walking along the beach or wading into water from the shore.
-Do not wade into flood waters or murky lakes and streams.

I am happy that @contentandwell has provided excellent information from her own experience of what works for her. I am not a water person.

I wonder if anyone else has any water related experience to share? What have you been told? What works for you?

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@gaylea1

@caro72 I met quite a few people from the North Bay area here in London at the transplant clinic at University Hospital. I hope you get the answers you are looking for.

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I have been to London a few times for lithotripsy in 2015 kidney stones so will meet my dietitian from work to see what would be the best diet for me they put me on Keto then low fobmap what next

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@contentandwell thank you so much for your help. I will definitely ask my transplant team as well.

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@caro72 I met quite a few people from the North Bay area here in London at the transplant clinic at University Hospital. I hope you get the answers you are looking for.

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