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Liver disease itching: What helps?

Transplants | Last Active: Nov 22, 2023 | Replies (155)

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@btg

@ugadawg1067 around the time I got listed my itching was about as bad as yours. When the cream and the cholestyramine drink powder stopped working one of the transplant hepatologists prescribed Zoloft for me to try. While the Zoloft did absolutely stop the itching, it came with some side effects that were not desirable. They backed me off of what they had originally prescribed which still worked with less intense side effects. You may want to ask about that, just make sure to ease into it with their guidance. Good luck, I know like many of us do what that intense itching was like. When it started ruining my sleep that was really the last straw. Keep us posted and we’ll all pray that you’ll get your transplant soon. That, seems to be the only cure for the itching.

Be well,

Bryan

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Replies to "@ugadawg1067 around the time I got listed my itching was about as bad as yours. When..."

I itched terribly for nearly 2 years. My hepatologist also prescribed Zoloft as it has an anti-itch side effect. It worked marginally for me, but also made me emotionally flat.
I tried every lotion & gel but always felt sticky. Sarna lotion helped, but I recommend the unscented version. I found that witch hazel helped, but it dries the skin. I would wake up at night multiple times and put witch hazel on a washcloth and just apply it to my skin for immediate relief. The other thing that helped were ice packs. I would sleep with large ice packs in my bed. I think the cold sensation trumped the terrible itching. I would put a towel between my skin and the ice packs.
I also recommend that you purchase simple white cotton gloves that you can wear to bed. These are available on Amazon and are inexpensive. I would scratch to the point of breaking my skin during my sleep, so the gloves helped.

One of the first things I noticed when I woke up post-transplant was that my itching was gone! Blessed Relief!