Life after Brain surgery

Posted by lisa88bloom @lisa88bloom, Mar 22, 2017

I had a 4 cm mengioma removed last year. It was in the skull base and was 14 hr surgery. I have a small regiment left, but watching with yearly MRIs….still have unbalance and numbness. I was curious if anyone else had a situation like this one. I spent a month in the hospital.

Hi Lisa,
Was it a foreman magnum meningioma?

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@buc091274

Anyone else suffer from long time effects of depression ?

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Welcome to Connect, @buc091274. Are you dealing with depression as a long-term side effects of brain tumor?

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Is it a foreman magnum meningioma?

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Hello everyone! I had a 3 cm cerebellar meningioma removed in Oct 2017. I went back to work in Jan 2018 only to be off now on medical leave since May 2018. I'm having major issues with imbalance, dizziness, headaches, and throbbing head pain. An MRI and Ct scan show encephelomalacia. The doctors assure me this is normal after brain surgery, however I'm curious to know if this could be causing all these symptoms? Anyone know anything about this?

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I had 2 removed in 2005 with no problems until 3 years ago. Dr said it’s scar tissue and nothing can be done. I have fatigue and extreme dizziness now for 3 years it’s horrible.

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@tiffanygal

I had 2 removed in 2005 with no problems until 3 years ago. Dr said it’s scar tissue and nothing can be done. I have fatigue and extreme dizziness now for 3 years it’s horrible.

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So encephelomalacia is scar tissue and is causing these symptoms?

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@hyoung79

So encephelomalacia is scar tissue and is causing these symptoms?

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Exactly

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In reply to @tiffanygal "Exactly" + (show)
@tiffanygal

Good to know! My doctors keep telling me it's normal after every brain surgery but haven't said my issues are caused by it. Now they want to check my heart thinking it is the cause of my dizziness. My blood pressure has also been high ever since the surgery. At this point I'm not sure what to do.

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I had 2 removed and no problems for 10 years. Were you dizzy right after surgery?

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@tiffanygal

I had 2 removed and no problems for 10 years. Were you dizzy right after surgery?

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I had surgery in Oct 2017 went back to work in Jan had normal pain from healing but in the end of May I woke up with severe head pain and dizziness. The pain is like a constant stabbing at the surgery site. They have me on Cymbalta for nerve pain. Dizziness is just not letting up.

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Hello my name is Jim just wanted to tell you I've had brain surgery in the past 4 yrs and now two cyberknife treatment cause tumors won't go away got 6 tumors hit by cyberknife and will go back in three more month to get checked out. I still golf fish and play ping pong haven't lost in years .I'm 70 years still fighting hang in there

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Hello @intheyear2525 That is an amazing story! I hope the positives continue to follow you for many years to come!
Cheers to you!

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@tiffanygal

I had 2 Brain tumors removed in 2005. One was the size of a softball and the other was like a golf ball. All went well till 2016. For the last 2 years I can’t stand without swaying, dizzy always and totally fatigued. Went back to the neurologist and was told it was from scar tissue. There is nothing that can be done to help me he said.

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I had brain surgery 2 yrs ago – successfully removed a benign 3 cm meningioma.
Sounds great
but I have balance problems, severe depression, ostopenia & other stuff. In reaearching all of these problems,
I've found out that the anti- seisure med (Kepra) causes a lot of these problems! .No doctor warned me of this.. So
my quality of life after surgery has been disappointing

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@gloriajean

I had brain surgery 2 yrs ago – successfully removed a benign 3 cm meningioma.
Sounds great
but I have balance problems, severe depression, ostopenia & other stuff. In reaearching all of these problems,
I've found out that the anti- seisure med (Kepra) causes a lot of these problems! .No doctor warned me of this.. So
my quality of life after surgery has been disappointing

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@gloriajean, what activities do you do to help correct the balance issues and depression? Do you find physical activities help? They may also help ostopenia.

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@gloriajean

I had brain surgery 2 yrs ago – successfully removed a benign 3 cm meningioma.
Sounds great
but I have balance problems, severe depression, ostopenia & other stuff. In reaearching all of these problems,
I've found out that the anti- seisure med (Kepra) causes a lot of these problems! .No doctor warned me of this.. So
my quality of life after surgery has been disappointing

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I had my surgery 7 years ago and since then I am on Keppra. I had similar problems of feeling sad/depressed (1-4 years) but now I am so used to Keppra and don't have any more issues. By the way, I take 2,000 mg daily. Sometimes…not always…time helps …specially with brain issues, this is my opinion.

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