Life after Brain surgery

Posted by lisa88bloom @lisa88bloom, Mar 22, 2017

I had a 4 cm mengioma removed last year. It was in the skull base and was 14 hr surgery. I have a small regiment left, but watching with yearly MRIs….still have unbalance and numbness. I was curious if anyone else had a situation like this one. I spent a month in the hospital.

@jamienolson

Hello @robinlynn, Welcome to Mayo Clinic Connect! Thank you for posting. This community is a safe place for you to meet other people discussing their medical related experiences. We all learn from so much from each other!

Here is a link to Mayo Clinic’s discussion on Pituitary tumors http://mayocl.in/2h5kGbu where they discuss treatment. I have also added another link to our research information center http://mayocl.in/2rpp3SW in hopes of digging up information on post radiation therapy. I hope you find both helpful.

What other problems besides fatigue have you been experiencing?
I wonder if starting a new topic thread in the cancer group about post radiation symptoms and how others are coping would be something you would be interested in? If so, I can walk you through the process or you can give it a go if you are interested. I am curious in knowing how many other people are asking some of the same questions.

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I think starting a thread about the late effects of chemo/radiation would be beneficial, along with ways to cope.

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I had 2 meningiomas and one was removed from the frontal area of the brain and futurantely it has not return in the last 3 years. I have one on my optic nerve and it cannot be removed. I am futurnate that I had protron radiation on this one and it has not to this point changed. I do have a mri every year at this point but it was every 6 months until now. No change is good. I had a lot of dizziness and balance problems before surgery but I have to say I am very lucky because I have been able to return to normal again but I do experience some headaches still and my brain is a little slow on vocabulary and memory. Good luck to you hope your symtoms less over time. Mine did. It does take awhile.

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It’s been 15 years since my brain tumors were removed. First 10 years no problem but the last 4 years I suffer horribly.

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@tiffanygal

It’s been 15 years since my brain tumors were removed. First 10 years no problem but the last 4 years I suffer horribly.

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Sorry to hear you are suffering horribly, @tiffanygal. Will you share more about what has been happening the last 4 years?

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Extreme Fatigue 24/7
Dizzy 24/7

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Yes, my friend. I had an ependymoma tumor removed from my spinal cord as it was near my brain stem. I was at Mayo 52 days and therapy for 4 years. I have numbness in my arms and legs and burning in my right hand especially. I do have balance issues but I work on this through exercise. I am 66 years old now and my surgery was ten years ago.

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I had a golf ball sized one removed, (but did not have a balata cover), still have numbness in face, jaw, and eye, chew on wrong side, but still drink a beer, run a little. When the doc is good, the rest is up to you and GOD.

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