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Can someone help me about life after AUS 800 implant?

Posted by rodneyverrill @rodneyverrill, May 8, 2024

This is my first question/post so please excuse me as I a new at this. I am 58 and have had an RP in October of 2023. My prostate was 155 grams and since the procedure I have been left essentially incontinent using 7-9 large pads a day. Although this has been difficult, I feel fortunate my psa has fallen to .008, a number my doctor tells me is considered undetected.
I have tried PT with very little results, my surgeon recommended an AUS, so this coming Monday I will have surgery to have this installed. I have read many of the posts within the prostate cancer section, but I am still curious about discomfort after the 5-6 week healing process and "regular activity like swimming, golf, and more strenuous activities like mowing and lifting firewood. I am of course second guessing my decision but would be appreciative of any feedback any of you have.

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Climber | @stevemaggart | Sep 29 4:03pm

I had a NNS RARP in the summer of 2024. I had a BCR on my first PSA following surgery. My PSADT was 2.1 months. At 90 day following surgery I started 40 sessions of IMRT to my prostate bed and a newly identified metastatic lymph node. I was also placed on Orgovyx and Daraludimide for a minimum of 2 years. I was initially very incontienent, but things improved somewhat such that I was using 1-3 pads per day at 6 months post surgery. I had had an ankle replacement the summer of 2023. Bone demineralization caused by the androgen deprivation therapy and the androgen pathway inhibitor caused my talus to develop a 1" diameter cyst below the talus component, so the ankle collapsed. I had revision surgery complete in mid-April 2026 with a new a titanium 3D printed talus. After surgery, I developed a severe urinary tract infection. A nurse had a hard time starting a catheter and kept poking around. As a result of the infection and/or the attempted catheterization, my incontience worsened significantly and I now use 4-5 large night time pads a day. I also use a pad on my bed and I use a penis clamp when out in public. I have wet my pants 4 time in the past month and I am tired of it! I am scheduled for my new AUS on December 1, 2026. The ADT and AR have been brutal on my physical and mental health - truly sucking my life away! I have my fingers crossed that this goes right and improves my life. But remember all the advise from so many folks, prostate cancer is no big deal!

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Jeff Marchi | @jeffmarc | Sep 29 8:59pm
In reply to @stevemaggart "I had a NNS RARP in the summer of 2024. I had a BCR on my..." + (show)
Profile picture for Climber @stevemaggart

I had a NNS RARP in the summer of 2024. I had a BCR on my first PSA following surgery. My PSADT was 2.1 months. At 90 day following surgery I started 40 sessions of IMRT to my prostate bed and a newly identified metastatic lymph node. I was also placed on Orgovyx and Daraludimide for a minimum of 2 years. I was initially very incontienent, but things improved somewhat such that I was using 1-3 pads per day at 6 months post surgery. I had had an ankle replacement the summer of 2023. Bone demineralization caused by the androgen deprivation therapy and the androgen pathway inhibitor caused my talus to develop a 1" diameter cyst below the talus component, so the ankle collapsed. I had revision surgery complete in mid-April 2026 with a new a titanium 3D printed talus. After surgery, I developed a severe urinary tract infection. A nurse had a hard time starting a catheter and kept poking around. As a result of the infection and/or the attempted catheterization, my incontience worsened significantly and I now use 4-5 large night time pads a day. I also use a pad on my bed and I use a penis clamp when out in public. I have wet my pants 4 time in the past month and I am tired of it! I am scheduled for my new AUS on December 1, 2026. The ADT and AR have been brutal on my physical and mental health - truly sucking my life away! I have my fingers crossed that this goes right and improves my life. But remember all the advise from so many folks, prostate cancer is no big deal!

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@stevemaggart
Wish you the best with the AUS. Had mine installed June 4 and activated July 10. It is a complete life change from 6 years of incontinence. Don’t have to wear black pants all the time. Can travel without a load of pads.

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