Mayo Clinic Connect
The pain management clinic I’ve just started going to is recommending these iv infusions. Apparently, you start by doing it weekly for 4 weeks. If it works for you, you need to do monthly ongoing. Has anyone heard of these or tried them?
Liked by Jen, Alumna Mentor
@debstinydogs Welcome to connect . I never heard this for fibromyalgia but just yesterday had lidocaine for trigger points in my back . Let me know if you try it and it works Ive had fibro since the 90,s
Liked by Justin McClanahan, Mamacita, Alumna Mentor
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@debstinydogs, I also add my welcome to @lioness'. @lioness, what was your experience with getting the lidocaine treatments? Even though you got it for a different reason, the experience of getting the treatment may be similar. Is it the same for you as @debstinydogs in that it may take a few injections/time to start working?
@debstinydogs, if you are comfortable sharing, have you tried any other management options for fibromyalgia?
@JustinMcClanahan Hi Justin yesterday I still hurt but this morning they seemed to help its general later in day when my back starts to hurt. I didn't even feel the injection needle ,very thin . I just felt a bearable prick. I,ll let you know later .
Liked by Jen, Alumna Mentor, Justin McClanahan
@JustinMcClanahan Ive been out and about today and by now my back would be killing me in thoracic area but I guess it took a day for the medicine to work as the trigger point injections are working now my back feels fine no pain The Tizanidine I was taking for muscle spasms make me sleepy so could only take at night but I would recommend this kind of injections . The Dr. ask where the sore spots are then injects as I said the needles are so thin you hardly feel them. I had 6 injections walked out with no problems.
I’ve only been diagnosed since Feb 2019, but have tried:
1. Gabapentin/neurontin 600 mg 3x’s a day. I don’t feel this really helped me and made me unable to come up with words or thoughts.
2. Hot Epsom Salt Baths: I find this really helps. I have a jetted tub, which is a plus. I sit in there for about 45-60 min. I add 2 cups of Epsom salts.
3. Magnesium Malate supplements, after a magnesium blood test tested low, which I’m told is quite common in fibro patients (that’s why the Epsom salts in the bath often helps) my Dr told me the malate version is the best to take for nerve/fibro pain and best for bioavailability.
4. I take a joint exercise class in a local hospital rehab pool. It’s 92 degrees. I do what I can, which some days isn’t much, and usually feel great afterward.
5. I’ve tried different CBD oils sublingually. It helped with general aches and pains, but didn’t help fibro pain. Some claim great success with this.
6. I’ve tried topical cbd creams – no help
7. I just started lyrica, even though I really didn’t want to because of what I hear about side effects, but had some really bad days and caved. It’s only been a week so initial dose is very low. Too soon to tell.
8. Went to a pain clinic and got some (7) Norco after filling out enough paperwork to choke a horse. Had to pee in a cup. Doesn’t matter, It didn’t help my pain anyway. Just made me tired.
9. Made an appt to see a pain psychologist. Haven’t gone yet.
10. Use ice bags sometimes, but heatings pads much more. I also use a heated mattress pad.
11. I wear wrist/hand splints at night when my wrists hurt (which is a lot!) Much less pain if I can’t bend them. Got the splints at Walgreens. Made by Futuro.
Still considering the lidocaine infusions. I want to hear from someone who has done them.
I’m searching everyday for something to help. I really hope something is developed to help with the fatigue and flu-ish feelings. I could sleep all day about 3-4 days a week.
I haven’t tried diet changes yet.
I hope some of this can help someone else.
@debstinydogs I have had Fibro for 15 years but have not heard of lidocaine infusion. Like @lioness I get trigger point injections and have similar results. I see my pain management doctor next week and will ask him about the infusion. Can't hurt to ask, right?
Liked by Justin McClanahan
For sure! Please let us know what he says, ok?
For sure! Please let us know what he says.
@sandytoes14 @debstinydogs I have tried all the above for fibro since Ive had it for 30 yrs. Besides the magnesium that is important and warm water pool I found the diet change that works for me and that is to go of the nightshade plants, tomatoes,peppers,eggplant and white potatoes. You can have them occasionally but not everyday. I also do gluten free as much as I can. But I love bread so occasionally I digress . Lyrica helped alittle in the small amounts but when mine went up to 100mg even I couldn't take it for side effects. The lidocaine trigger point injections do help never had the infusion but do the patches. I,ll be interested also to hear how they work.
Hello. Although I have small fiber neuropathy, not fibromyalgia, I experience daily head to toe chronic pain. My neurologist recommended lidocaine IV infusions. I've learned the doseage is based on weight, I'm 120lbs and started at 600mg weekly for 4 weeks. I met with my Dr and told him that I sensed it was mildly lessening some areas of pain so I would continue to stick with it and he increased me to 750mg for 4 weeks. I'm half way into that dose and I'm in to win it so, will keep pursuing. My max dose will be 1000mg. Only time will tell if I get that far. I will say this…the one week I didn't have the infusion, my pain went from miserable daily pain to debilitating miserable daily pain. Therefore I will keep at it. Some days however, I wonder if my expectations are too high and I'm hoping for no pain at all. Wishing you luck as you navigate pain management.
@lioness, I also have had the Fibromyalgia diagnosis since the early nineties. Pretty sure I had it much earlier than that. Super Flare starred yesterday, and I thought I would stop by the "Chronic Pain" group and say hello.
Nothing new to share, really. Some days are so painful I consider it a success if I manage a shower. ALL the deep cleaning and yard maintenance falls to me now. My poor husband needs a hip replacement, but cannot have one. Too risky. He is not used to such pain. I feel so bad for him.
Of course, we are doing everything we can to investigate alternative ways of handling this situation.
I will ask about the Lidocaine next office visit with my PCP.
Keep hope alive!
@mamacita I know how you feel those flares wont let you do anything accept wait them out . Do everything you know but still doesn't help much does it. Perhaps you can hire someone for the yard work ? Tomorrow is a new day with a silver lining in it for you
Liked by Mamacita, Alumna Mentor
Dearest @lioness, my Grandson will do anything I ask him to do, whether it be yard work or housework. He doesn't even ask for payment. He knows we all pitch in around our house.
Our riding lawn mower is broken, as is our manual push mower. Both need hauling to the repair shop. We have been having our neighbor next door do it. She is happy to do it, and can use the extra money. Nice how things work out, sometimes.
There are indeed silver linings. Everywhere we look, if we keep our eyes open.
Love and cyberhugs dear heart!
@mamacita Same to you cyber hugs friend
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