Lichen Simplex Chronicus

Posted by alexis @lexonpark, Feb 16 1:49pm

I Posted early in Jan about a rash on Gammagard. Internist sent me to Derm, my regular doctor wasn't available didn't think I needed a biopsy gave me an RX for cortisone cream, didn't help. Saw the Rheumatologist didn't know what was going on. He suggested a biopsy. Hematologist thinks it was Gammagard. He also suggested a biopsy. I went back to the Dermatologist and saw my regular doctor for a biopsy, came back as Lichen Simplex Chronicus and referred me back to Rheumatologist. Has anyone been diagnosed with Lichen Simplex Chronicus and what treatment did you receive?

Hello @lexonpark. How frustrating to get moved around from specialty to specialty. However, you did find your way to a diagnosis after dealing with all of that. Here is some additional information on Lichen Simplex Chronicus, https://emedicine.medscape.com/article/1123423-treatment. According to what I have been finding in research, it appears the treatment largely depends on where the location of the symptoms. Steroid creams seem to be the front line treatment to bring the inflammation and itchiness down, but the strength of the steroid depends on how thin or thick the skin is.

@lexonpark, have you been offered a treatment plan yet or are you still waiting or weighing your options?

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I haven't seen my Rheumatologist or Hematologist yet. I hope to see both of them this week. I have it on both arms. Some itching on my shoulders.

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@lexonpark

I haven't seen my Rheumatologist or Hematologist yet. I hope to see both of them this week. I have it on both arms. Some itching on my shoulders.

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@lexonpark Be sure to take a notebook and pen with you so you can write down what the doctors say! After reading the article from @JustinMcClanahan , write questions to ask. Sounds like you’re on top of things! Good luck!

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Update saw my Hematologist decided I was not allergic to Gammagard. So I received my IVIG infusion. The dermatologist gave me a steroid cream to use twice a day for one week. I had an appointment with my Rheumatologist yesterday and he said the biopsy results show thickened skin as a result of chronic itching and rubbing. Back to square one. Not sure why I had the itching. Haven't change medication and no new foods.

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@lexonpark

Update saw my Hematologist decided I was not allergic to Gammagard. So I received my IVIG infusion. The dermatologist gave me a steroid cream to use twice a day for one week. I had an appointment with my Rheumatologist yesterday and he said the biopsy results show thickened skin as a result of chronic itching and rubbing. Back to square one. Not sure why I had the itching. Haven't change medication and no new foods.

Jump to this post

Could be Lichen Sclerosus. Sounds like that’s what you have.

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