Lichen sclerosis--Has anyone else been told they're in remission?

Yes, it can go into remission. For me it didn’t last lone. It was many years before the doctors could figure it out and I think that is the reason mine didn’t last long.
I would try it as that med id strong. Give your body a test and rest from the meds.
Wish you the best.

Hi! Lichen Planus can go into remission!! I didn't know it could go into remission either.
My Lichen Planus has been in remission for over a year!
I feel so fortunate!!
I haven't used cortisone cream etc.. since I went into remission.
I also have Oral Lichen Planus and Esophageal Lichen Planus. ELS is incredibly rare. Less than 50 people in the country have this.
It's interesting that my Lichen Planus is in remission. Although, the Oral Lichen Planus and Esophageal Lichen Planus are not in remission. The ELS doesn't go into remission. My esophagus slowly closes. I've been in the surgery center three times this year. They put me to sleep and try to stretch my esophagus a little bit if they can.
I hope your Lichen Planus stays in remission for the rest of your life!!!
Take care ❤️

Yes , remission is quite common but no cure .
Sometimes it comes back without symptoms where visual is awkward .
Therefore best to use the steroid cream at least once a month to potentially avoid the risk of an unknown outbreak and possibility of turning to cancer.
Good luck with your journey .
Stress is a major contributor to outbreaks of lichen sclerosis.
Take care 🙌

Yes, it does go into remission. I now use Clobetasol as and when I have a flare.

Thank you for sharing your experience. How often do flare-ups occur? How long do they last?

Yes it can go into remission. I found out it came back when I started going into menopause.
I developed it in my early 20s at that time. The doctors didn’t know what it was. Then I went into remission after I had my children.
When it came back, then the doctors tried to figure out what it was. It took him a few years to come up with a name.
This is very painful and I sure wish they could find a cure for it once and for all.

@minnesota10, even though my LS is in remission, I still have the burning that comes with the damaged nerves. I do use Clobetasol twice a week, all the time. I use a compounded cream to numb the area, but that does not always work. I also take Amitriptyline, 30 mg every night. I had formerly taken 25 mg and now take 3, 10 mg every night since the pill does not come in 30 mg strength. Yes, it is all very painful and I do not think there will be a cure in my lifetime. At least you know what you have. It took 4 gyns to find one who knew about LS. With all good wishes, @joybringer1.

Amen

I've had lichen planus for over twenty years. I tried to go without clobetasol but couldn't take the burning and itching. I use it twice a week to keep it under control.

This condition is lifelong I was told by my gynaecologist. I suffered for two years because my family doctor did not know what is was. He was giving me antibiotics. The gynaecologist (a woman) thank heaven knew what it was right away. I also use clobetasol a small amount twice a week. The first day I used it what a relief. Mine has not gone into remission be thankfully there is a treatment!
All the best!