1. < Autoimmune Diseases

Lichen planus

Posted by firelady @firelady, Sep 2, 2012

I was diagnosed about two yrs ago with lichen planus an auto imune disease they say it is very rare and not contagious yet my younger brother has it also. I have the skin lichen planus as well as oral lichen planus which affects my gums, cheeks, and tongue. It is very , very painful. I had a very large back surgery in April and I got lichen planus sores on my back as a result of the trauma from surgery my incision that is twenty inches long healed but my sores from lichen planus are still open. I don't know how to get them to heal and right now I have just developed an outbreak in my mouth. The pain is so deep in the nerves that I feel like my teeth are going to explode and I can feel my pulse under my teeth. I can't explain the pain and I am begging for someone to tell me if they found anything that helps with the pain. Also I never heard of lichen planus , what can I expect from this disease? How often will I have outbreaks? will it ever go away? Should I have my teeth pulled out or will dentures make it even worse? Not too many doctors seem to know much if anything about this auto imune disease.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

navyblue14 | @navyblue14 | Mar 14, 2020
In reply to @kanaazpereira "Welcome to Connect, @mayo1234lichen. Are you able to share a few more details? Have you been..." + (show)
@kanaazpereira

Welcome to Connect, @mayo1234lichen. Are you able to share a few more details? Have you been diagnosed with lichen planus?

Jump to this post

I have been.

REPLY
lioness | @lioness | Feb 25, 2020
In reply to @lioness "@becsbuddy Thanks Becky that is what I found also along with a peroxide rinse diluted of..." + (show)
@lioness

@becsbuddy Thanks Becky that is what I found also along with a peroxide rinse diluted of course and honey in water . I thought you may have come across something else . Thanks. have a good night Linda

Jump to this post

@becsbuddy I did this for several days 3 x a day and it id much better . Baking soda and salt are miracles aren't they for so many things

REPLY
lidnaj | @lidnaj | Feb 23, 2020
In reply to @lioness "@lidnaj It is this is the second time I have had it . From previous I..." + (show)
@lioness

@lidnaj It is this is the second time I have had it . From previous I do the rinse,s as Becky says and also a diluted peroxide rinse ,followed by the baking soda then honey so far today this seems to be helping . Also my throat on the one side is sore so gargling will help that . Im going to try the L Lysine the Dr told me about to see if that will help . You also rest tonight

Jump to this post

Will do, @lioness

REPLY
lioness | @lioness | Feb 23, 2020
In reply to @lidnaj "@lioness Thanks. I had a scare about the oral lichen planus, but it was a false..." + (show)
@lidnaj

@lioness Thanks. I had a scare about the oral lichen planus, but it was a false alarm. I do hope you find something to calm the sores in your mouth, which sounds like a miserable situation. Thanks @becsbuddy for getting me in the conversation. Hope you both have a good night and rest. Linda

Jump to this post

@lidnaj It is this is the second time I have had it . From previous I do the rinse,s as Becky says and also a diluted peroxide rinse ,followed by the baking soda then honey so far today this seems to be helping . Also my throat on the one side is sore so gargling will help that . Im going to try the L Lysine the Dr told me about to see if that will help . You also rest tonight

REPLY
1 reply
lidnaj | @lidnaj | Feb 23, 2020
In reply to @lioness "@becsbuddy Thanks Becky that is what I found also along with a peroxide rinse diluted of..." + (show)
@lioness

@becsbuddy Thanks Becky that is what I found also along with a peroxide rinse diluted of course and honey in water . I thought you may have come across something else . Thanks. have a good night Linda

Jump to this post

@lioness Thanks. I had a scare about the oral lichen planus, but it was a false alarm. I do hope you find something to calm the sores in your mouth, which sounds like a miserable situation. Thanks @becsbuddy for getting me in the conversation. Hope you both have a good night and rest. Linda

REPLY
1 reply
lioness | @lioness | Feb 23, 2020
In reply to @becsbuddy "@lioness sounds awful, Linda! When I had bad sores last year, the oncologist had me use..." + (show)
@becsbuddy

@lioness sounds awful, Linda! When I had bad sores last year, the oncologist had me use a salt and baking soda rinse. 1/4 tsp each in warm water. Use like a mouth wash. Don’t swallow! Unfortunately, there’s no magic cure. Good luck! Becky

Jump to this post

@becsbuddy Thanks Becky that is what I found also along with a peroxide rinse diluted of course and honey in water . I thought you may have come across something else . Thanks. have a good night Linda

REPLY
2 replies
Mentor
Becky, Volunteer Mentor | @becsbuddy | Feb 23, 2020
In reply to @lioness "@becsbuddy I have developed canker sores inside my mouth gums only Any suggestion to clear them..." + (show)
@lioness

@becsbuddy I have developed canker sores inside my mouth gums only Any suggestion to clear them up?I ask my Dr she said alot of people are getting good results from L Lysine ? Do you know of anything?

Jump to this post

@lioness sounds awful, Linda! When I had bad sores last year, the oncologist had me use a salt and baking soda rinse. 1/4 tsp each in warm water. Use like a mouth wash. Don’t swallow! Unfortunately, there’s no magic cure. Good luck! Becky

REPLY
1 reply
lidnaj | @lidnaj | Feb 23, 2020
In reply to @becsbuddy "@lidnaj Welcome to MayoClinicConnect. We all try to help each other with our different diagnoses and..." + (show)
@becsbuddy

@lidnaj Welcome to MayoClinicConnect. We all try to help each other with our different diagnoses and share information for what works and what doesn’t.
I’m glad you’ve been diagnosed and are getting treatment for the lichen Planus. And, you say it’s working! What kind of doctor are you seeing? Your primary doctor or a specialist?

Jump to this post

Hi, again. I was referred to a dermatologist and that dermatologist referred me to a different one who seems to do a lot of work with lichen planus.

REPLY
lioness | @lioness | Feb 23, 2020

@becsbuddy I have developed canker sores inside my mouth gums only Any suggestion to clear them up?I ask my Dr she said alot of people are getting good results from L Lysine ? Do you know of anything?

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.