Lichen planus

I agree!!!!! I have Esophageal Lichen Planus which is incredibly rare! It's terrible!!! I also have it in my mouth and at times in my skin. It's so hard to eat. I've lost 30lbs. in the last few months. I truly feel for you!

I have had Oral LP for over 8 years. Seen numerous top specialists in NYC and Boston. I hear over and over, there is NO CURE. And there does not seem to be any treatment except steroids. These are only a temporary fix. Someone needs to research this!

Welcome @elizabeth6. I moved your question about the causes of lichen planus to this existing discussion so you can connect with others managing lichen planus:
- Lichen planus: https://connect.mayoclinic.org/discussion/lichen-planus-2da636/?commentsorder=newest#chv4-comment-stream-header

According to Mayo Clinic (https://www.mayoclinic.org/diseases-conditions/lichen-planus/symptoms-causes/syc-20351378), lichen planus occurs when your immune system attacks cells of the skin or mucous membranes. It's not clear why this abnormal immune response happens. The condition isn't contagious.

Lichen planus can be triggered by:
- Hepatitis C infection
- Flu vaccine
- Certain pigments, chemicals and metals
- Pain relievers, such as ibuprofen (Advil, Motrin IB, others) and naproxen (Aleve, others)
- Certain medications for heart disease, high blood pressure or arthritis

Where have the signs of lichen planus appeared for you? How long have you had this?

Licen planus. What causes?

Sorry to hear what your going throughI was diagnosed with lichen planus in February of 2022. What worked for me after several months was Clobetasol cream. It started to heal about several weeks after but could feel relief as weeks went by now all I have are scars. Thank God! On Dec16 2022 I went through major surgery and because of the anesthesia steroids antibiotics and whatever more I ve had a breakout in my mouth. It is excruciating it’s everywhere in my mouth my teeth are throbbing I had a molar taken out this past week and another next week because the pain is unbearable once this thing hits your roots and nerves it’s excruciating. I spoke to my dentist about removing my teeth. I started rinsing my mouth with chamomile flower resin Whole Foods they have it the brand is teabags it’s in a brown bag use one cup water boil it to 212 degrees turn off poor in cup put in bag and let it sit for 3-5 minutes. Let this cool room temp and rinse a few times with it take the tea bag as is with some liquid on it put in a zip lock and put it in freezer to get really cold or frozen and put it in your mouth. It’s considered to be anti inflammatory antiseptic and calming to the skin and nerves . It has helped me very much. It actually soothes the pain a bit. Don’t eat crunchy stuff hot salty spicey no soda light on the caffeine and after you eat it’s imperative to keep mouth clean brush and rinse with chamomile and let that soak into your lesions for about 30-45 minutes. Drink lots of water . I just started using tríamcinolone acetonide 0.1% paste in my mouth it applies as a thin film it will then turn to a paste and attach to your mouth and that where it’s starts doing it’s job I use it every 6 hrs not good or liquid after for a least two hrs it’s best right before your go to bed cause it sits there all night till next application. I always brush them rinse again with chamomile before next application so all the old paste is removed and New paste does it’s job. I hope you feel better. This is a life condition unfortunately you will get better but you will have flare ups oh acidic things is a no no I love pickles but that ship has sailed for me.

My spell check would not let say SALAVIA

No salaries is a sure invitation to yeast. Nystatin in the recipe is necessary

@rashida thanks. I knew it was a steroid and wanted to make sure you didn’t have a more serious oral outbreak that requires a high dose prednisone taper.

@bustrbrwn22 - do you mean Lyderm gel? Yes, it certainly worked for me. Oracort, Nystatin, Prednisolone and many other treatments were tried and did nothing for me. Ten days of Lyderm twice a day cleared my mouth. It is not recommended for long term use, but I have had a couple of flares since then and just one application has been enough to clear it again now.

I thank so much. If you could find that recipe I’ll have my surgeon call it in for me it’s been 3 wks since my major surgery and my mouth has had me living in pure misery. It’s getting so bad I’m getting anxiety attacks now.