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Libtayo (cemiplimab) treatment for SCC...any comments?

Posted by Sue, Volunteer Mentor @sepdvm, Dec 16, 2020

I am looking at Cimiplimab, an immunotherapy for metastatic SCC skin cancer and wondering if any others are undergoing this treatment, side effects, success, etc.

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kathyheidt | @kathyheidt | Sep 29 1:08pm
In reply to @anonymous624 "Unfortunately, after three treatments of Libtayo, my tumor on my parotid gland grew. My oncologist wants..." + (show)
@anonymous624

Unfortunately, after three treatments of Libtayo, my tumor on my parotid gland grew. My oncologist wants me to start on Cetuximab (Erbitux) and radiation. I was scheduled for surgery on October 3rd but after reviewing my recent scans the Tumor Board recommended no surgery due to perineural spread along the facial nerve branches. I am very disappointed and considering second opinions from other surgeons. Anyone have this situation?

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My understanding is that cet works I was on cet, cem and chemo prior to surgery the cet they feel helped though I had a lot of skin side effects but worth it if it stops the spread
I am at Sloane so I did not get second opinion but more information imo always helpful

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anonymous624 | @anonymous624 | Sep 29 1:50pm
In reply to @kathyheidt "My understanding is that cet works I was on cet, cem and chemo prior to surgery..." + (show)
@kathyheidt

My understanding is that cet works I was on cet, cem and chemo prior to surgery the cet they feel helped though I had a lot of skin side effects but worth it if it stops the spread
I am at Sloane so I did not get second opinion but more information imo always helpful

Jump to this post

Thank you! What type of cancer do you have?

REPLY
kathyheidt | @kathyheidt | Sep 29 2:22pm

I have squamous cell carcinoma in my maxillary left sinus which spread to my hard palate stage 3/4 I had a maxillectomy but had neoadjuvant therapy before surgery in May then immunotherapy after but had to stop treatments bc it caused pneumonia and inflamed bad neck arthritis

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