Share this:
nanceedee
@nanceedeefeperi

Posts: 5
Joined: Jan 26, 2018

Leaky gut?

Posted by @nanceedeefeperi, Fri, Jan 26 1:39pm

Hello, I’m hoping to connect with others who may be able to Help with some answers with what I’m dealing with. I have fibromyalgia and am gluten intolerant. I also have eczema that has spread over different parts of my body. My dr prescribed a steroid to help with the eczema, however I am extremely itchy with a rash on arms
Legs torso. Dr thinks it’s all related but I’m not sure
I have had bouts with heart burn s d constipation/diarrhea. I’ve been reading up about leaky gut syndrome and think I have many of
The symptoms. Any tips as to how I can go about this would be appreciated. I’m in the ER now because of severe fatigue feeling faint s d shallow breathing.

REPLY

Hello @nanceedeefeperi — Welcome to Mayo Connect. I’m glad you found us. Connect is a good place to ask questions and learn what other members with similar health problems are doing for treatment. It looks like you have a lot going on with your health. I’m glad that you are searching for others with similar health concerns. Being your own advocate is important. I’m not sure if you saw that there is a discussion open for “Leaky Gut, Constipation and Gluten Free”. Here is a link to the discussion:

https://connect.mayoclinic.org/discussion/leaky-gut-constipation-and-gluten-free/bookmark/?ajax_hook=action&_wpnonce=f403b0d456

@kanaazpereira posted the following information in the discussion that may be helpful for you:

You might be interested in viewing these talks on the Gastroenterology & GI Surgery Page (https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/) on Connect:

– The ‘Pros’ of Probiotics: Dr. Joseph Murray on Mayo Clinic Radio https://connect.mayoclinic.org/newsfeed-post/the-pros-of-probiotics-dr-joseph-murray-on-mayo-clinic-radio/
– Is Larazotide Acetate the Answer to Leaky Gut? https://connect.mayoclinic.org/newsfeed-post/is-larazotide-acetate-the-answer-to-leaky-gut-1/

Hoping for a quick recovery for you and release from the ER.

John

The mention of gluten intolerance and an itchy rash make me suspicious of dermatitis herpetiformis which is the skin manifestation of celiac disease. You may want to look into getting a skin biopsy of the rash to see if this could be the culprit. But be sure that your physician understands how to do the biopsy — have to follow special guidelines of staining and immunoflourescence.

@jigglejaws94

The mention of gluten intolerance and an itchy rash make me suspicious of dermatitis herpetiformis which is the skin manifestation of celiac disease. You may want to look into getting a skin biopsy of the rash to see if this could be the culprit. But be sure that your physician understands how to do the biopsy — have to follow special guidelines of staining and immunoflourescence.

Jump to this post

I have been tested for celiac disease and was negative. I’ve been reading about leaky gut and I have a lot of the symptoms. My GI Dr seems to have knowledge of leaky gut, he took a stool sample and blood work. I’ve been to two Drs, Urgent care and the ER. Stopped eating sugar, gluten free with plenty of fruits/vegetables and purified water.

Hi @nanceedeefeperi,

I’m tagging @clemlaa @ambrose @meemer @mieke @michellecrcrn @uneeq1 @lighthouseceliac, who may have more insights to share about the symptoms you’re experiencing.

Since you mentioned you are gluten intolerant, I thought you might wish to view this post in which Dr. Joseph Murray talks about people who may not have celiac disease, and cannot tolerate gluten, but experience symptoms similar to those with celiac disease.
– The Strange World of Non-Celiac Gluten Sensitivity https://connect.mayoclinic.org/newsfeed-post/the-strange-world-of-non-celiac-gluten-sensitivity-1/

I think often times the assumption is made that anyone who is suffering with inflammation has leaky gut. Often times tests aren’t run to necessarily diagnose the problem — but rather measures are taken to deal with the problem. A good place to start is with a Whole 30 elimination diet with the autoimmune protocol also.

Please login or register to post a reply.