Anyone have Laryngeal Sensory Neuropathy?

Posted by tkubby @tkubby, Jan 23, 2019

I am looking to talk with anyone that has been told they have larynx sensory neuropathy. In other words, over active nerves in the larynx.

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

I cough very seldom when I lay down on my side.

REPLY
@wendymb

It seems like there are many of us with this mysterious chronic cough/throat clearing condition. Have had it for decades, originally thought it a bout of bronchitis. And then it continued. Saw multiple ENTs, GI docs, allergists, a pulmonologist, speech therapist. They call it multifactorial and so I take PPI, allergy meds, none of which address the issues. I wish I had answers for all of you for this (thank goodness) not serious but nonetheless quality of life issue. It would be interesting as a group to find out if we have any common denominators, i.e. medications, illnesses, that might make things clearer. Anyway good luck to all.

Jump to this post

Yes truly messes with quality of life. I too am looking for answers. Been trying different things with meds and sinuses for awhile. Still have every day. I hope you find some relief soon.

REPLY

I was diagnosed 8 yrs ago with LSN. Spent two years taking different meds the ENT prescribed for it but none of them helped at all. Then went to a lung doctor. He said I didn't have LSN and had been misdiagnosed and actually had COPD and asthma. I spent a year taking his prescriptions and nothing helped. I then went to a gastroenterologist. They wanted to do tests for GERD. Instead of the invasive tests I asked to just be put on the meds they would prescribe if I actually had GERD and we would see if they helped. They were PPI's and I took them as prescribed and they did nothing for the cough, thus I assumed I don't have GERD. I happened to see a doctor, husband of a friend of mine, and he said to take 40 mg of laratadine a day...either two in the morning, two at night, or spread throughout the day. This has worked the best of all, although I still cough several times a day, but none at night. Laratadyne is an over the counter allergy med, very inexpensive. Of everything I've tried this works the best. Good luck.

REPLY
@texanna

I was diagnosed 8 yrs ago with LSN. Spent two years taking different meds the ENT prescribed for it but none of them helped at all. Then went to a lung doctor. He said I didn't have LSN and had been misdiagnosed and actually had COPD and asthma. I spent a year taking his prescriptions and nothing helped. I then went to a gastroenterologist. They wanted to do tests for GERD. Instead of the invasive tests I asked to just be put on the meds they would prescribe if I actually had GERD and we would see if they helped. They were PPI's and I took them as prescribed and they did nothing for the cough, thus I assumed I don't have GERD. I happened to see a doctor, husband of a friend of mine, and he said to take 40 mg of laratadine a day...either two in the morning, two at night, or spread throughout the day. This has worked the best of all, although I still cough several times a day, but none at night. Laratadyne is an over the counter allergy med, very inexpensive. Of everything I've tried this works the best. Good luck.

Jump to this post

I have tried nearly everything for my throat clearing problem including reflux and sinus meds (RX and OTC) apple cider vinegar, gluten free diet, etc. I have had allergic tests and a endoscopy and no MD seems to have an answer. Throat clearing sounds like a minor problem but definitely affects the quality of life for a sociable person! I have been taking
20 mg Amitriptyline at night and it has helped a little but some days it is still bad. I will definitely try Laratadyne. Thanks so much for the tip.

REPLY
@sellen

I have tried nearly everything for my throat clearing problem including reflux and sinus meds (RX and OTC) apple cider vinegar, gluten free diet, etc. I have had allergic tests and a endoscopy and no MD seems to have an answer. Throat clearing sounds like a minor problem but definitely affects the quality of life for a sociable person! I have been taking
20 mg Amitriptyline at night and it has helped a little but some days it is still bad. I will definitely try Laratadyne. Thanks so much for the tip.

Jump to this post

I know I am at my wits end with this throat clearing. Every day and night. Some days worse than others. Not sure what to do next. Have asked PCP for referral to have Food Allergy Test. I have had some response to try no dairy, chocolate and no peppermint. I also have had ENT appts and gastro did Endoscopy. Also going to ask other docs I see to change me to different med to see if this helps. Hope you find more relief soon...

REPLY
@tkubby

I recently was certified for medical marijuana. I have tried several different kinds and finally have had great success with CBD drops. They are a 10:1 ratio of CBD to THC. I was told that CBD works best when it is kept in your system constantly. It has helped tremendously with my sensory neuropathy cough. After many many years I have found some relief. I am still currently taking tramadol but would like to see if I can wean off of that and just continue with the CBD drops.

Jump to this post

Hi, could you share details about the CBD product you're using? I've been dealing with a chronic cough and have experimented with various treatments like tramadol, SLN injections, Amitriptyline, Gabapentin, inhalers, nasal rinse, Lyrica, etc. thank you soooo much

REPLY
Please sign in or register to post a reply.