Lamictal side effects

Posted by minajo @minajo, Jul 18, 2024

My nonverbal daughter, autism, epilepsy is titrating from 200( after 9 minutes seizure and one after in ambulance) to 300 XR brand name at 25 mg increase every week but seems especially sad, just no interest in doing simple things, like puzzle, wordsearch books.. She is low functioning on autism spectrum but just seems lifeless
No more seizures past week but if Lamictal for bipolar will she just get more depressed as dose goes up?
We had a cheery, happy engaged daughter, now not so
Also takes Seroquel and Buspar, has for years
After disaster with Zonisamide we hoped this drug would work .
She was on Dilantin for many years but always had to go to lab for levels, adjust the doses..
She can't talk but everyone sees the difference but doctors only want seizure control..
Thanks to all in this group !

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@santosha

Hello @kb2014
Many AEDs can cause constipation, and it's really uncomfortable to deal with. While I didn't experience this particular side effect with Lamictal, I definitely had it with other AEDs and with my current one.
Have you considered trying golden flaxseed flour? I've been using it daily by adding a teaspoon to my yogurt, and it's made a significant difference for me. It might be worth giving it a shot!
Have a nice weekend!
Chris

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Thank you Chris. I take a fiber supplement. I just added a probiotic supplement. I have to make sure I drink plenty of water. Green tea and lemon ginger tea help. I also take docusate. My symptoms are better. My appointment with a gastroenteroligist is in November. I continue to work on dietary issues. Something else I noticed is I need to walk at least 3000 steps daily. In NM with the heat recently it has become a challenge.

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@kb2014

Thank you Chris. I take a fiber supplement. I just added a probiotic supplement. I have to make sure I drink plenty of water. Green tea and lemon ginger tea help. I also take docusate. My symptoms are better. My appointment with a gastroenteroligist is in November. I continue to work on dietary issues. Something else I noticed is I need to walk at least 3000 steps daily. In NM with the heat recently it has become a challenge.

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My pleasure @kb2014
I'm glad to hear your GI symptoms have improved with those changes! Having GI issues myself, I've been focusing on eating more vegetables, tracking my daily steps, and staying well-hydrated.
I understand the challenge of walking in hot weather. One tip that has helped me is using a damp, well-wrung towel around my neck on those warm days. As I have learned, high temperatures can also be a trigger for seizures.
You mentioned you have had anxiety and depression in the past due to some trauma. If you're comfortable sharing, I'd love to know what approaches or strategies have been most helpful for you in managing those challenges?

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Well learning not to act or react to everything and everybody. CBT. Cognitive behavior therapy. Becoming and being aware of my agency. My power to make my own decisions choose my thoughts etc. Learning about codependency and narcissism. Since I had a craniotomy to remove abcess left temporal lobe I learned about neuroplasticity and how this surgery changed me. Deep breathing. Living a simpler quieter life. Learning to say no.

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Hi I’ve been on lamotrogine, or as you can call it lamical. It has been a godsend to me ,I stared on 50ml a day. Obviously that didn’t work. Long st, now I take 125, in the morning and 125 in the evening. It’s about timing make sure it’s taken at the same time every day for each dose. Same as our brains work. It’s like a clock.

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@kb2014

Well learning not to act or react to everything and everybody. CBT. Cognitive behavior therapy. Becoming and being aware of my agency. My power to make my own decisions choose my thoughts etc. Learning about codependency and narcissism. Since I had a craniotomy to remove abcess left temporal lobe I learned about neuroplasticity and how this surgery changed me. Deep breathing. Living a simpler quieter life. Learning to say no.

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Hi @kb2014
Thank you so much for sharing your approaches, I have really appreciated them.
You've done some really meaningful work on yourself. Breaking and changing habits is so challenging, and it sounds like you've made real progress. That's truly something to celebrate!
I also faced anxiety and depression at the start of my epilepsy treatment in 2019. I was fortunate to find a wonderful neuropsychologist I've been working with since then. Learning to say no is such a fundamental skill that I'm still working to put into practice more consistently.
When you mentioned "learning not to act or react to everything and everybody," Mel Robbins' book "The Let Them Theory" came to mind. In case you're interested, here's a link to one of her interviews where she explains the "Let Them" and "Let Me" theory: https://www.youtube.com/watch?v=d4z5C8G32AY&list=PLjjNLpxtjihMuEy0geqIqkBGTKTkFxIr4&index=65&t=2s

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@santosha

Hi @kb2014
Thank you so much for sharing your approaches, I have really appreciated them.
You've done some really meaningful work on yourself. Breaking and changing habits is so challenging, and it sounds like you've made real progress. That's truly something to celebrate!
I also faced anxiety and depression at the start of my epilepsy treatment in 2019. I was fortunate to find a wonderful neuropsychologist I've been working with since then. Learning to say no is such a fundamental skill that I'm still working to put into practice more consistently.
When you mentioned "learning not to act or react to everything and everybody," Mel Robbins' book "The Let Them Theory" came to mind. In case you're interested, here's a link to one of her interviews where she explains the "Let Them" and "Let Me" theory: https://www.youtube.com/watch?v=d4z5C8G32AY&list=PLjjNLpxtjihMuEy0geqIqkBGTKTkFxIr4&index=65&t=2s

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I have read the book. It is great Hard sometimes though to watch people self destructive have no boundaries etc especially as a retired nurse plus I had a lot of medical care and trauma recovery. I have to work on my codependency still daily

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My nonverbal, autistic, epileptic daughter has been on Lamictal XR for about year and half
After her GI issues, sigmoidectomy she had very hard time with recovery, had few tonic clonic seizures, possibly from intestinal nerve triggering? But her behavior is hard to manage, from pain, we try not to do ER if possible as last year 4 different admissions, 49 days total is very traumatic so wondering why these blood levels are sent to Texas( from California) and take 7 days minimum
We need to see is she's sub, supra therapeutic and when she's manic needs to be stat..
She just switched from zonisamide and the titration took forever
But this lamictal if for bi polar doesn't seem to be working..
Any suggestions IF we can get Neuro to change?
She's also on Seroquel 175 daily and Buspar .
Really don't want to change med but she's not in good place right now😟
Thank you all!

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