Lactulose question

Posted by jodeej @jodeej, Apr 8, 2018

I’ve seen that several of you have taken lactalose (not sure how you spell it) while awaiting transplant. My husband is having some HE symptoms, but wants to work as long as possible. Is it possible to take lactalose and still work? I don’t want him to take it, go to work, and then have bathroom issues.

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@rosemarya

@jodeej , JoDee, Since you are in Rochester, you might find some resources at the Barbara Woodward Lips Patient Education Center. The center is located in the Siebens Building, Subway Level, near the Siebens elevators and the Mayo Clinic Store and the Patient and Visitor Cafeteria. The library receptionist can help you locate hard copy materials. And there is a research librarian who might be able to help you locate information or resources.
https://www.mayoclinic.org/patient-visitor-guide/education-centers/patient-education-minnesota
Rosemary

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@jodeej, as a Mayo Clinic patient, you can request a librarian to search information for you. I’m writing to you while I’m out and about. When I get back to my home office, I’ll send you information on how to do this.

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@kltchrmn

I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier to go. Before I started Lactulose, I had really bad constipation.

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@kltchrmn

I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier to go. Before I started Lactulose, I had really bad constipation.

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@rosemarya I hope you had a happy transplantiversary. Do you do anything special to celebrate? I have only had one transplantiversary so far and it happened to be on the day that my son-in-law's parents had a pre-wedding Hindu ceremony for the couple. My son-in-law did give me a beautiful toast at the luncheon afterward, which was nice. I even took a tiny sip of champagne — very tiny.
JK

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@kltchrmn

I take Lactulose and Xifaxan. I’m also on diuretics. For me, the Lactulose makes it easier to go. Before I started Lactulose, I had really bad constipation.

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@contentandwell, Thanks, JK. It is always a very emotional day for me. Early on someone told us to be sure to celebrat the blessed event every year by doing something special, like you might remember a birthday.
We went out for a nice quiet dinner. And we raised our iced tea and lemonade in a toast!
Rosemary

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@amyintucson

I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance – I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.

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Hi @amyintucson, Just checking in. How are you doing?

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@rosemarya

@jodeej , JoDee, Since you are in Rochester, you might find some resources at the Barbara Woodward Lips Patient Education Center. The center is located in the Siebens Building, Subway Level, near the Siebens elevators and the Mayo Clinic Store and the Patient and Visitor Cafeteria. The library receptionist can help you locate hard copy materials. And there is a research librarian who might be able to help you locate information or resources.
https://www.mayoclinic.org/patient-visitor-guide/education-centers/patient-education-minnesota
Rosemary

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@jodeej here's the contact information for the patient library services in Rochester. http://www.mayo.edu/mayo-clinic-libraries
Mayo Clinic Libraries
200 First St. SW
Rochester, MN 55905
Phone: 507-284-2061
Email: library@mayo.edu

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@amyintucson

I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance – I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.

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Hi all – been having a rough last 2 months. I have a follow-up at Mayo/Phoenix on Friday. Been losing weight as I have not been very hungry plus the Lactulose causing diarrhea. i don't get to check here often – depends on my energy/concentration levels.

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@amyintucson

I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance – I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.

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Hi Amy, thank you for taking the time to pop in. I'm so sorry to hear that life has been throwing extras challenges at you. I hope that they can make suggestions on Friday at your follow-up to help with your appetite and the diarrhea.

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@amyintucson

I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance – I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.

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@amyintucson I don’t recall your history here. Are you a transplant candidate? I know the trials of lactulose, hopefully you are a candidate and a transplant will happen soon. After my transplant, when I was still in some serious discomfort, my husband would cheer me up by saying “no more lactulose!”. I wish that for you, with a wonderful recovery.
JK

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@amyintucson

I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance – I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.

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@amyintucson, It is good to hear from you. I understand why you have not been checking in, and I am sorry to hear that you are experiencing a rough time. Unfortunately that is what happens. I want to assure you that things will be better after you get your transplant. Our diseases and our journeys might all be different, and our waiting and our recoveries might all be different, but the hopes for the future and undiscovered strengths will carry you through.
I send my thoughts to you as you meet with your team on Friday.
Rosemary

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@amyintucson

I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance – I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.

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I am liver transplant candidate at Mayo/Phoenix.

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