Does anyone know
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What that year must’ve been like @sandras. I cannot imagine. But I bet you can imagine how @sophiadelgado must feel. She’s been waiting over a year now.
Sophia, I forgot to add the link to the message with information about being on multiple lists. Here you go: https://connect.mayoclinic.org/discussion/i-have-been-added-to-the-transplant-list-for-a-liver-at/
Sandras, how long ago did you have your transplant and how is the recovery going? How are you doing today?
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don’t know what a year or more would be like?
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For a pancrease transplant? Are you a diebettic type 1?
You said “but died being on a plain”. What do that mean?
I had my transplant Dec 21, 2013 afer a long long road to recover (i regected 2 times and had many complications) I am now now longer diebattic,free of insuline. It is a miracle that i made it! But i feel so very grateful especially to my doner and his family for giving me a second chance! God bless!
Yes I am type 1 for 40 years, and the pancreas was on a commercial flight that got held up some ware.
I was waiting for it being prepped but its usable time had passed and was not there yet. so it was cancelled.
Oh so sorry. To. Here. That
Hi, I waited for a year and also had many calls. It is frustrating but hang
in there! I personally know what is is like to wait.
Hi @bszychow @sandras @sophiadelgado,
It’s been a while since we’ve heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?
Well about a year ago I lost my job and medical insurance so I was placedon hold for transplant. I was then referred to the university of Washingtonfor Transplant since this is in my region. I have been on hold ever sincefighting back and forth with medical insurance I’m to the point now where Itry not to think about Transplant sounds two stressful and everyday lifehas its own issues to deal with. But since chosen to not worry so muchabout and just living life my kidney function has gone up to 26 percent sowho knows I might not even need one when it’s all said and done I’m justtrying to enjoy everything and not street so much. I wish the best of luckto everyone dealing with kidney issues. PRAY FIRST
So good to hear from you @sophiadelgado. Sorry that the news isn’t better re your transplant wait. But I have to congratulate you on your attitude. Wow! Mind over matter and increasing your liver function. Well done.
@bszychow and @rosemarya will you join me in welcoming Sophia back?
Glad to know there is some good news in all that mess. I have been through so many jobs and in and out of insurance. one thing I did find was biofeedback in witch I can control some of my body through my mind. no joke it works. now on the list for a year, still waiting. Hope more things start going better for you. keep that positive attitude, it is a big help. Your in my thoughts.
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