Pancreas and Kidney transplant - share experiences

Posted by charba1 @charba1, Jul 23, 2011

What that year must’ve been like @sandras. I cannot imagine. But I bet you can imagine how @sophiadelgado must feel. She’s been waiting over a year now.

Sophia, I forgot to add the link to the message with information about being on multiple lists. Here you go: https://connect.mayoclinic.org/discussion/i-have-been-added-to-the-transplant-list-for-a-liver-at/

Sandras, how long ago did you have your transplant and how is the recovery going? How are you doing today?

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Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don’t know what a year or more would be like?

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don’t know what a year or more would be like?

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For a pancrease transplant? Are you a diebettic type 1?

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don’t know what a year or more would be like?

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You said “but died being on a plain”. What do that mean?

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@colleenyoung

What that year must’ve been like @sandras. I cannot imagine. But I bet you can imagine how @sophiadelgado must feel. She’s been waiting over a year now.

Sophia, I forgot to add the link to the message with information about being on multiple lists. Here you go: https://connect.mayoclinic.org/discussion/i-have-been-added-to-the-transplant-list-for-a-liver-at/

Sandras, how long ago did you have your transplant and how is the recovery going? How are you doing today?

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I had my transplant Dec 21, 2013 afer a long long road to recover (i regected 2 times and had many complications) I am now now longer diebattic,free of insuline. It is a miracle that i made it! But i feel so very grateful especially to my doner and his family for giving me a second chance! God bless!

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don’t know what a year or more would be like?

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Yes I am type 1 for 40 years, and the pancreas was on a commercial flight that got held up some ware.
I was waiting for it being prepped but its usable time had passed and was not there yet. so it was cancelled.

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don’t know what a year or more would be like?

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Oh so sorry. To. Here. That

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don’t know what a year or more would be like?

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Hi, I waited for a year and also had many calls. It is frustrating but hang
in there! I personally know what is is like to wait.

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Hi @bszychow @sandras @sophiadelgado,
It’s been a while since we’ve heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

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@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It’s been a while since we’ve heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

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Well about a year ago I lost my job and medical insurance so I was placed
on hold for transplant. I was then referred to the university of Washington
for Transplant since this is in my region. I have been on hold ever since
fighting back and forth with medical insurance I’m to the point now where I
try not to think about Transplant sounds two stressful and everyday life
has its own issues to deal with. But since chosen to not worry so much
about and just living life my kidney function has gone up to 26 percent so
who knows I might not even need one when it’s all said and done I’m just
trying to enjoy everything and not street so much. I wish the best of luck
to everyone dealing with kidney issues. PRAY FIRST

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@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It’s been a while since we’ve heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

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So good to hear from you @sophiadelgado. Sorry that the news isn’t better re your transplant wait. But I have to congratulate you on your attitude. Wow! Mind over matter and increasing your liver function. Well done.

@bszychow and @rosemarya will you join me in welcoming Sophia back?

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@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It’s been a while since we’ve heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

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welcome back.

Glad to know there is some good news in all that mess. I have been through so many jobs and in and out of insurance. one thing I did find was biofeedback in witch I can control some of my body through my mind. no joke it works. now on the list for a year, still waiting. Hope more things start going better for you. keep that positive attitude, it is a big help. Your in my thoughts.

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