Knee Replacement Failure - Need total reconstruction

Posted by babette @babette, Sat, Jul 27 10:35am

I'm pretty devastated, everyone. I had my R TKR a year ago and always knew something wasn't right. My initial surgeon said everything looked great and to give it time, PT, etc. Well I went to one of the top ortho hospitals in the country yesterday and saw a surgeon who comes very highly recommended. He told me my femur is out of alignment, there is a problem with a ligament, and my knee cap is off to one side. I wish I had written down more specifics, dh was with me but once we heard this would all have to be redone, I think we went into kind of shock and didn't process the details very well. **He understood completely why I've been in so much pain this past year. ** He referred me to a colleague who does more complex revisions than he does and I feel great about that but have to wait a month to see him and begin the process. All over again. I have no idea what this will be like, the actual surgery, recovery, etc.

I'd love to hear from others who have gone through this. Also, has anyone successfully sued the surgeon who screwed up? I'm furious to have lost a year of my life to this and now even more time to the repair and recovery.

Oh Babette @babette – I hate this. I wish I didn't have to press the heart button. How awful. At the same time, you must feel some sense of relief and validation that you have had confirmation on the agony you have been experiencing for a year. I know you are in the Northeast. Are you going to Mass General?

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@babette I am sorry for what you have had to endure but very glad that you finally have a solution. If I recall, the surgeon with whom you consultedj was the one who did my knee and with whom I was/am very happy.

I had a friend who went through two years of pain and limping before finally getting help from a surgeon at that hospital. I suspect you will be seeing the same surgeon. She was very happy with what he did for her. Her initial surgery was up here in NH.
JK

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@debbraw

Oh Babette @babette – I hate this. I wish I didn't have to press the heart button. How awful. At the same time, you must feel some sense of relief and validation that you have had confirmation on the agony you have been experiencing for a year. I know you are in the Northeast. Are you going to Mass General?

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Hi Debbra! Not Mass General, but New England Baptist which actually has a better reputation for orthopedics (is orthopedics only) than MGH does. Still, I'm not quite to the gratitude stage, just angry and hurt that I lost a year of my life to this and who knows how much more time to the coming surgery and recovery. I so appreciate your concern and caring. xo

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@contentandwell

@babette I am sorry for what you have had to endure but very glad that you finally have a solution. If I recall, the surgeon with whom you consultedj was the one who did my knee and with whom I was/am very happy.

I had a friend who went through two years of pain and limping before finally getting help from a surgeon at that hospital. I suspect you will be seeing the same surgeon. She was very happy with what he did for her. Her initial surgery was up here in NH.
JK

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I'm very happy to have the resources at hand, for sure, but as I told Debbra below, I'm not quite grateful yet. Speaking of NH, dh and I have just put in an offer on an lovely old house in a tiny town there! PM if you like 🙂 Don't know how we will finesse a move during all of this, but we'll work it out. So tired of the rat race in MA. I'd love to know who your friend went to for rehab/PT.

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@babette

I'm very happy to have the resources at hand, for sure, but as I told Debbra below, I'm not quite grateful yet. Speaking of NH, dh and I have just put in an offer on an lovely old house in a tiny town there! PM if you like 🙂 Don't know how we will finesse a move during all of this, but we'll work it out. So tired of the rat race in MA. I'd love to know who your friend went to for rehab/PT.

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I just read your story very heartbreaking . I had a total knee replacement one year ago at New England Baptist Hospital .
I am still 20° away from the goal they have set for me which is 105° flexion . I have had a second opinion,x-rays, and they cannot find an anatomical reason why I cannot flex my right leg . They blame it all on scar tissue . I have had 60 sessions of physical therapy been riding my recumbent bike at my house every day, and do my exercises . I am in pain when I walk from my car to the entrance of the store . Also when climbing stairs I cannot do it step over step . I was never given a CPM machine upon discharge from the hospital which I think would’ve made a grave difference . In addition to the 60 sessions of PT I had a Dynasplint, and two manipulations . We happen to live in Massachusetts but we are 70 miles south heading towards Cape Cod . If anybody has any similar experiences but they please share it with me and what treatments have been done thank you very much !!

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@mwatts91757

I just read your story very heartbreaking . I had a total knee replacement one year ago at New England Baptist Hospital .
I am still 20° away from the goal they have set for me which is 105° flexion . I have had a second opinion,x-rays, and they cannot find an anatomical reason why I cannot flex my right leg . They blame it all on scar tissue . I have had 60 sessions of physical therapy been riding my recumbent bike at my house every day, and do my exercises . I am in pain when I walk from my car to the entrance of the store . Also when climbing stairs I cannot do it step over step . I was never given a CPM machine upon discharge from the hospital which I think would’ve made a grave difference . In addition to the 60 sessions of PT I had a Dynasplint, and two manipulations . We happen to live in Massachusetts but we are 70 miles south heading towards Cape Cod . If anybody has any similar experiences but they please share it with me and what treatments have been done thank you very much !!

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I'm so sorry to hear this! How frustrating for you. I'm going to PM you.

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@babette So sorry to hear about what you have been going through. I've followed your posts because your problems sound a lot like what I am going through at 7 months post-op bilateral. I am young, healthy and was active before my surgery. I have felt things were wrong at 4 months but at 5 months my OS said everything looks good on xrays see you in a year. I am in constant pain, can't walk normal, simple daily tasks are exhausting. Had a 2nd opinion and he said femur implant could be too big, knee caps are sitting "kittywaumpus" and he wants to do injections to my ligaments now for the pain. I'm very curious about what your new Dr said about your femur, knee caps and ligaments and how it contributes pain and doing a revision. The new OS I have said to wait 18 months before considering revision. I don't think I can possibly live like this for a year and be so debilitated. Yes, it's good to have answers, but the agony and pain presently and in the future is hard to handle. Keep me posted after your visit with revision specialist and good luck!

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@mwatts91757

I just read your story very heartbreaking . I had a total knee replacement one year ago at New England Baptist Hospital .
I am still 20° away from the goal they have set for me which is 105° flexion . I have had a second opinion,x-rays, and they cannot find an anatomical reason why I cannot flex my right leg . They blame it all on scar tissue . I have had 60 sessions of physical therapy been riding my recumbent bike at my house every day, and do my exercises . I am in pain when I walk from my car to the entrance of the store . Also when climbing stairs I cannot do it step over step . I was never given a CPM machine upon discharge from the hospital which I think would’ve made a grave difference . In addition to the 60 sessions of PT I had a Dynasplint, and two manipulations . We happen to live in Massachusetts but we are 70 miles south heading towards Cape Cod . If anybody has any similar experiences but they please share it with me and what treatments have been done thank you very much !!

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@mwatts91757 I’m so sorry for what you are going through. Since you traveled a distance to have the surgery I’m sure you must have done a lot of research trying to find the best possible surgeon th do it.

I had a CPM machine after my first TKR and turned it in early since I did not feel it was helpful. There are many doctors who do not feel they are. My second TKR was done by a doctor who did not suggest one, he made no comment on them either way. So, the CPM machine probably would not have made much difference for you.

I was in such extreme pain prior to my first TKR that I did little research into surgeons. If I knew then what I know now – how many of these surgeries leave patients unhappy — I would have researched more and waited longer to get a better surgeon. As it is, the first is not bad, but the second one by a different surgeon at Brigham and Womens has definitely been better, I’m very happy with it. I hope a cause and a solution is found soon.

@doodles418 I can understand not wanting to wait to have this fixed. It’s awful when pain plagues you daily, especially when you think there may be a solution but you can’t have that yet. I hope you are able to get something done sooner.

I hope we hear back from both of you as you progress.
JK

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@contentandwell

@mwatts91757 I’m so sorry for what you are going through. Since you traveled a distance to have the surgery I’m sure you must have done a lot of research trying to find the best possible surgeon th do it.

I had a CPM machine after my first TKR and turned it in early since I did not feel it was helpful. There are many doctors who do not feel they are. My second TKR was done by a doctor who did not suggest one, he made no comment on them either way. So, the CPM machine probably would not have made much difference for you.

I was in such extreme pain prior to my first TKR that I did little research into surgeons. If I knew then what I know now – how many of these surgeries leave patients unhappy — I would have researched more and waited longer to get a better surgeon. As it is, the first is not bad, but the second one by a different surgeon at Brigham and Womens has definitely been better, I’m very happy with it. I hope a cause and a solution is found soon.

@doodles418 I can understand not wanting to wait to have this fixed. It’s awful when pain plagues you daily, especially when you think there may be a solution but you can’t have that yet. I hope you are able to get something done sooner.

I hope we hear back from both of you as you progress.
JK

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Well I know one person that had a hip done by this particular surgeon . My girlfriend has since gone to him for her knee and she has achieved 100° of flexion which isn’t bad . She went to him last February not knowing that I was having such problems .
What I’m looking for now is a doctor to do revisions that is proficient at it I don’t know if you can help me here
Thanks for everything

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@contentandwell

@mwatts91757 I’m so sorry for what you are going through. Since you traveled a distance to have the surgery I’m sure you must have done a lot of research trying to find the best possible surgeon th do it.

I had a CPM machine after my first TKR and turned it in early since I did not feel it was helpful. There are many doctors who do not feel they are. My second TKR was done by a doctor who did not suggest one, he made no comment on them either way. So, the CPM machine probably would not have made much difference for you.

I was in such extreme pain prior to my first TKR that I did little research into surgeons. If I knew then what I know now – how many of these surgeries leave patients unhappy — I would have researched more and waited longer to get a better surgeon. As it is, the first is not bad, but the second one by a different surgeon at Brigham and Womens has definitely been better, I’m very happy with it. I hope a cause and a solution is found soon.

@doodles418 I can understand not wanting to wait to have this fixed. It’s awful when pain plagues you daily, especially when you think there may be a solution but you can’t have that yet. I hope you are able to get something done sooner.

I hope we hear back from both of you as you progress.
JK

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He waited until I was four months postop to give me the CPM machine and I only had it for two weeks . I got up to about 105° of flexion with that machine . My mom had one postop at MGH years ago and I remember using them in the early 80s and most likely the early 90s as a nurse . I don’t care what the doctors say I think they are helpful for people that don’t do passive exercises as much as they should. We’re all guilty of the fact that when we’re under supervision of a therapist that we perform more exercises when we are pushed. With a machine you set it for the allotted time and settings and you just endure it. Feel like everything else they get rid of a good product and then 10 years from now they’ll be bringing it back Mark my words !

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@mwatts91757

Well I know one person that had a hip done by this particular surgeon . My girlfriend has since gone to him for her knee and she has achieved 100° of flexion which isn’t bad . She went to him last February not knowing that I was having such problems .
What I’m looking for now is a doctor to do revisions that is proficient at it I don’t know if you can help me here
Thanks for everything

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@mwatts91757 I think that @babette may be helpful in recommending a revision surgeon. I believe that the doctor she went to who recommended him is the same excellent surgeon who did my second TKR and I have been very happy with that. If he’s recommending someone I would trust his opinion. Are you also in the Boston area? I am in southern NH and go to Boston for most of my healthcare, most often MGH, but Brigham and Womens does have a better reputation for orthopedics than they do. I also chose B&W because the doctor I went to is a developer of the Conformis knee and that was the knee I wanted.

It does seem as if some people are helped by the CPM machine, but I do not feel that it was helpful for me.
JK

Liked by jeffkirc

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Conformis is the way to go along with obviously a great surgeon!

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@contentandwell

@mwatts91757 I think that @babette may be helpful in recommending a revision surgeon. I believe that the doctor she went to who recommended him is the same excellent surgeon who did my second TKR and I have been very happy with that. If he’s recommending someone I would trust his opinion. Are you also in the Boston area? I am in southern NH and go to Boston for most of my healthcare, most often MGH, but Brigham and Womens does have a better reputation for orthopedics than they do. I also chose B&W because the doctor I went to is a developer of the Conformis knee and that was the knee I wanted.

It does seem as if some people are helped by the CPM machine, but I do not feel that it was helpful for me.
JK

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May I ask how the conformis knee differs from the styker prosthesis ?

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@contentandwell

@mwatts91757 I think that @babette may be helpful in recommending a revision surgeon. I believe that the doctor she went to who recommended him is the same excellent surgeon who did my second TKR and I have been very happy with that. If he’s recommending someone I would trust his opinion. Are you also in the Boston area? I am in southern NH and go to Boston for most of my healthcare, most often MGH, but Brigham and Womens does have a better reputation for orthopedics than they do. I also chose B&W because the doctor I went to is a developer of the Conformis knee and that was the knee I wanted.

It does seem as if some people are helped by the CPM machine, but I do not feel that it was helpful for me.
JK

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What is the name of your surgeon at B+W hospital that uses the conformis?

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@mwatts91757

May I ask how the conformis knee differs from the styker prosthesis ?

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Custom-made joint based on your anatomy rather than off the shelf joint replacement

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