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babette (@babette)

Knee Replacement Failure - Need total reconstruction

Joint Replacements | Last Active: May 24 11:18pm | Replies (78)

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I just read your story very heartbreaking . I had a total knee replacement one year ago at New England Baptist Hospital .
I am still 20° away from the goal they have set for me which is 105° flexion . I have had a second opinion,x-rays, and they cannot find an anatomical reason why I cannot flex my right leg . They blame it all on scar tissue . I have had 60 sessions of physical therapy been riding my recumbent bike at my house every day, and do my exercises . I am in pain when I walk from my car to the entrance of the store . Also when climbing stairs I cannot do it step over step . I was never given a CPM machine upon discharge from the hospital which I think would’ve made a grave difference . In addition to the 60 sessions of PT I had a Dynasplint, and two manipulations . We happen to live in Massachusetts but we are 70 miles south heading towards Cape Cod . If anybody has any similar experiences but they please share it with me and what treatments have been done thank you very much !!

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Replies to "I just read your story very heartbreaking . I had a total knee replacement one year..."

I'm so sorry to hear this! How frustrating for you. I'm going to PM you.

@mwatts91757 I’m so sorry for what you are going through. Since you traveled a distance to have the surgery I’m sure you must have done a lot of research trying to find the best possible surgeon th do it.

I had a CPM machine after my first TKR and turned it in early since I did not feel it was helpful. There are many doctors who do not feel they are. My second TKR was done by a doctor who did not suggest one, he made no comment on them either way. So, the CPM machine probably would not have made much difference for you.

I was in such extreme pain prior to my first TKR that I did little research into surgeons. If I knew then what I know now – how many of these surgeries leave patients unhappy — I would have researched more and waited longer to get a better surgeon. As it is, the first is not bad, but the second one by a different surgeon at Brigham and Womens has definitely been better, I’m very happy with it. I hope a cause and a solution is found soon.

@doodles418 I can understand not wanting to wait to have this fixed. It’s awful when pain plagues you daily, especially when you think there may be a solution but you can’t have that yet. I hope you are able to get something done sooner.

I hope we hear back from both of you as you progress.

There is a Facebook group called arthrofibrosis support. You will find a lot of people who have similar experiences there, and may be some answers for you.