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lovelly2017
@lovelly2017

Posts: 4
Joined: Feb 15, 2017

Kidney transplant - process for being a living donor

Posted by @lovelly2017, Feb 14, 2017

My son needs has end stage renal failure and need a kidney transplant. Iam a potential donor. I am really scared. I just did the bloodwork to see if iam a true match. Iam afraid of what the next process will be.

REPLY

Welcome to Connect, @lovelly2017.
I hope you don’t mind, but I moved your message to the Transplants so that you can meet both donors and recipients, and get answers to your questions.

I’m tagging @uneeq1 and @gregorytremblay who have been through the living donor experience. Hopefully they can answer some questions. I’d also like to introduce you to @rosemarya @coastalgirl and @scottb32, three kidney transplant recipients.

Lovelly, when do you find out if you are a match?

Dear @lovelly2017, It is an honor and a privilege to welcome you to Connect. We have a page that contains information from Mayo’s Transplant Department, that will be able to help you. ( I am not at my regular computer, so please forgive me because I have to give you the long route to this information ) Here goes: At top of this page click on DISCUSS.
Then click on PAGES.
Next scroll to TRANSPLANTS.
You will come to a 4 Tabs -Newsfeed -Recipient Toolkit -Donor Toolkit -Resources. Make your selection.
I hope that your tests will produce a positive outcome.
I invite you to return with any questions or concerns, or to just chat after you read thru this information.
In the meantime, please know that my thoughts are with you and your son.
Rosemary (liver/kidney 2009)

@lovelly2017, I hope that you were able to find some helpful information on the Transplant Page Donor Toolkit.

I received my transplant almost 8 years ago. And while I do not share your (and your son’s) same situation, I do admit to having experienced the fear and anxiety of waiting, the wondering, and hoping and doubting, and even crying.
Another thing that I have learned is that the entire transplant process, recipient/donor, is very thorough. And you can be comforted knowing your health and your son’s health are the topmost priority.
I am thinking of you.
Do you know how long until you get the results?
Rosemary

@colleenyoung

Welcome to Connect, @lovelly2017.
I hope you don’t mind, but I moved your message to the Transplants so that you can meet both donors and recipients, and get answers to your questions.

I’m tagging @uneeq1 and @gregorytremblay who have been through the living donor experience. Hopefully they can answer some questions. I’d also like to introduce you to @rosemarya @coastalgirl and @scottb32, three kidney transplant recipients.

Lovelly, when do you find out if you are a match?

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The donor coordinator say it takes about two wks. Idk i have miased feelings. I really want to do this for my son but in the same token iam afraid that if iam a match the next processs seem so involved with all testing

@rosemarya

@lovelly2017, I hope that you were able to find some helpful information on the Transplant Page Donor Toolkit.

I received my transplant almost 8 years ago. And while I do not share your (and your son’s) same situation, I do admit to having experienced the fear and anxiety of waiting, the wondering, and hoping and doubting, and even crying.
Another thing that I have learned is that the entire transplant process, recipient/donor, is very thorough. And you can be comforted knowing your health and your son’s health are the topmost priority.
I am thinking of you.
Do you know how long until you get the results?
Rosemary

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Thank you. They said two weeks but i got a call today from the donor coord. I did the bloodwork last friday so they said they were not sure if they could process it was soppose to do it mon-wed. But iam worried cause iam not why she is calling so early.

@lovelly2017, That is a confusing message. I can understand why it worries you. Sometimes these things follow a time schedule of their own, so maybe it is okay. Do you have a phone number where you can speak to the donor coordinator about your concern?
Were you able to find the Living Donor information that I told you about? I want you to read it because I think you will find it helpful. If you need help getting to it, let me know.
Rosemary

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@rosemarya

@lovelly2017, That is a confusing message. I can understand why it worries you. Sometimes these things follow a time schedule of their own, so maybe it is okay. Do you have a phone number where you can speak to the donor coordinator about your concern?
Were you able to find the Living Donor information that I told you about? I want you to read it because I think you will find it helpful. If you need help getting to it, let me know.
Rosemary

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@lovelly2017 here is a direct link to the Living Donor information that Rosemary refers to http://mayocl.in/2lSxf7C The Mayo Clinic Transplant Department wrote this to help guide living donors. I hope you find it helpful.

@rosemarya

@lovelly2017, That is a confusing message. I can understand why it worries you. Sometimes these things follow a time schedule of their own, so maybe it is okay. Do you have a phone number where you can speak to the donor coordinator about your concern?
Were you able to find the Living Donor information that I told you about? I want you to read it because I think you will find it helpful. If you need help getting to it, let me know.
Rosemary

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Yes i was able to find the page thank you! I will contact my donor coord tom am. I just get real nerveous at times! Not sure why i mean i know this is in Gods hands cause I have no control on my own! But iam still just an imperfect human I try not 2 let my thoughts get the best of me !

@rosemarya

@lovelly2017, That is a confusing message. I can understand why it worries you. Sometimes these things follow a time schedule of their own, so maybe it is okay. Do you have a phone number where you can speak to the donor coordinator about your concern?
Were you able to find the Living Donor information that I told you about? I want you to read it because I think you will find it helpful. If you need help getting to it, let me know.
Rosemary

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@lovelly2017, I believe that it is okay to be nervous, especially when dealing with a serious issue and decision like this one is. It is natural to want to be in control – of everything – in our lives. The unknowing is indeed difficult to accept. I like your honest attitude about your feelings. And I admire your confidence in knowing where to place your trust!
Rosemary

Hi @lovelly2017 – I recently donated a kidney to one of my friends. It’s normal to feel nervous and scared. Use the resources available at your hospital to discuss your concerns. The process took us almost a year, she was on dialysis prior to the procedure. I had the surgery three weeks ago and am still in the recovery stages. The feeling I get from helping her live live greatly outweighs my discomfort. I hope you are a match for your son! Keep us updated 🙂

@uneeq1

Hi @lovelly2017 – I recently donated a kidney to one of my friends. It’s normal to feel nervous and scared. Use the resources available at your hospital to discuss your concerns. The process took us almost a year, she was on dialysis prior to the procedure. I had the surgery three weeks ago and am still in the recovery stages. The feeling I get from helping her live live greatly outweighs my discomfort. I hope you are a match for your son! Keep us updated 🙂

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@uneeq1, Dear Lisa, Thank you for returning to Connect with your updated information. I wish you and your friend many more years of friendship and health.
I invite you to keep in touch with us.
Rosemary

@uneeq1

Hi @lovelly2017 – I recently donated a kidney to one of my friends. It’s normal to feel nervous and scared. Use the resources available at your hospital to discuss your concerns. The process took us almost a year, she was on dialysis prior to the procedure. I had the surgery three weeks ago and am still in the recovery stages. The feeling I get from helping her live live greatly outweighs my discomfort. I hope you are a match for your son! Keep us updated 🙂

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Why did it take a year? I just sent my blood kit to Mayo for my sister. We are in our 60’s. I was hoping we could do this before her daughter gets married in July so she would feel well. My sister is doing the fluid exchange. Thanks.

@uneeq1

Hi @lovelly2017 – I recently donated a kidney to one of my friends. It’s normal to feel nervous and scared. Use the resources available at your hospital to discuss your concerns. The process took us almost a year, she was on dialysis prior to the procedure. I had the surgery three weeks ago and am still in the recovery stages. The feeling I get from helping her live live greatly outweighs my discomfort. I hope you are a match for your son! Keep us updated 🙂

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@shbertrand, This is a good question. I want to welcome you and to thank you for asking it. I am a recipient, but I have no experience with living organ donation. While we wait for some more responses, I want to share this direct link to Living Donor information. http://mayocl.in/2lSxf7C There are materials for transplant recipients as well as living donors. I hope it is helpful.
Have you spoken to anyone at Mayo about this?
Rosemary

@uneeq1

Hi @lovelly2017 – I recently donated a kidney to one of my friends. It’s normal to feel nervous and scared. Use the resources available at your hospital to discuss your concerns. The process took us almost a year, she was on dialysis prior to the procedure. I had the surgery three weeks ago and am still in the recovery stages. The feeling I get from helping her live live greatly outweighs my discomfort. I hope you are a match for your son! Keep us updated 🙂

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It took a year because I have multiple arteries and we had to switch hospitals. The first transplant center said they couldn’t do so we got a second opinion at the Indiana University transplant center. It took several months to get approved and scheduled, then I caught a bad cold and we had to reschedule for a month later.
They need to make sure both the donor and the recipient are in good health, so all of the tests take some time. It good be different at your transplant center. I wanted to go to Mayo because I know someone else who goes there and had her transplant there, but it was too far for the recipient. Having it done and recovering by July does not sound do-able to me, but talk to your coordinator!

Best of Luck!
Lisa

@uneeq1

Hi @lovelly2017 – I recently donated a kidney to one of my friends. It’s normal to feel nervous and scared. Use the resources available at your hospital to discuss your concerns. The process took us almost a year, she was on dialysis prior to the procedure. I had the surgery three weeks ago and am still in the recovery stages. The feeling I get from helping her live live greatly outweighs my discomfort. I hope you are a match for your son! Keep us updated 🙂

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@shbertrand, I would like to also add a welcome to @rosemarya‘s. You have found a great place here on Mayo Clinic Connect, a community full of information, support and lots of advice from members who have experienced being a donor or recipient.

The page link that rosemary provided to you to the Living Donor information is filled with information and materials. Please let us know if you have further questions or if there is something specific you are wondering and unable to find on the page.

Please keep us updated along this process so others can also learn from what you share.

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