Kidney transplant - The Journey from the Donor's Side

Posted by mauraacro @mauraacro, Jan 2, 2018

I’m headed to Rochester on the 10th for surgery on the 12th. I’m excited and nervous! I didn’t know the recipient but have gotten to “meet” her and some of her daughters through phone calls and emails.
I’ve had labs done at my doctor’s office and went to Mayo a few weeks ago for a million more tests. My case was presented to the donor board a few days before Christmas and I was approved and notified the same day. It seems like everything took so long and now is going so fast.
I’m interested in hearing from donors but haven’t had a lot of luck. It seems like the recipients are the ones who post the most, which gives me some info and reassurance but it would be nice to hear from the other side too.

@rosemarya

I know that some of you are not on Facebook, so I thought I would share this. I just saw it on the Mayo Clinic Transplant FB Page!

– Kidney donor now on mission to help save even more lives
https://www.news4jax.com/news/kidney-donor-now-on-mission-to-pay-it-forward-help-save-more-lives?linkId=62048033
For FB users – https://www.facebook.com/MayoClinicTransplant

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@rosemarya What a great story, and a great guy to do this and then be inspired to try to get others to follow and do the same. That is truly so selfless.
JK

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@mauraacro I wish you the best of luck with your donation surgery! What a wonderful gift you are giving.
Blessings,
JoDee

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@jodeej

@mauraacro I wish you the best of luck with your donation surgery! What a wonderful gift you are giving.
Blessings,
JoDee

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@jodeej thank you!
My surgery was almost a year ago but(fortunately) new people are responding, inquiring or donating so that post is getting bumped to the top

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@gingerw

@hopefulgirl Thank you, from the wife of a kidney transplant patient, for your generosity. If you Haven't been in contact, consider communicating with UNOS [United Network for Organ Sharing]. I don't know where you are located but they may be able to have you as a volunteer, to be an ambassador of sorts for living donor programs. It is thanks to you that a greater percentage of those needing organs can have a better chance for a second chance!
Ginger

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(Does anyone know if there is a way to post without it being in response to another post? πŸ™‚ I am an NP at Mayo and am in the testing phase of donating a kidney. I completed the first day of testing Friday and it was so good to see what my patient's go through in a busy day!
I was blessed to be able to find my way around, but still found the day a little exhausting. The 18 hour blood pressure testing and the 24 hour urine testing made the day, umm challenging. BTW we went to a movie that night and I thought the bp machine would not be audible to others but of course it seemed to go off when the movie was quiet… the couple in front of us turned around a couple of times at first. I apologized after the movie and he said he is a cancer patient at Mayo and they figured out right away what it was πŸ™‚ They were very nice! So, back to my day.. everyone I met was SO nice and helpful! The process is very thorough and for good reason. So far all of my results are good and I have two more days of testing next Thursday and Friday. When I was asked at what percent I was interested in doing this I said %100!!! I have worked at Mayo for two years (we came here after my sister had been working here for 30 years already!) and feel confident in the care and the people I have met have been amazing!

Enough rambling πŸ™‚ I would love prayers that the rest of my testing turns out good and I am able to proceed with donating!
Thanks!

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@hopefulgirl

(Does anyone know if there is a way to post without it being in response to another post? πŸ™‚ I am an NP at Mayo and am in the testing phase of donating a kidney. I completed the first day of testing Friday and it was so good to see what my patient's go through in a busy day!
I was blessed to be able to find my way around, but still found the day a little exhausting. The 18 hour blood pressure testing and the 24 hour urine testing made the day, umm challenging. BTW we went to a movie that night and I thought the bp machine would not be audible to others but of course it seemed to go off when the movie was quiet… the couple in front of us turned around a couple of times at first. I apologized after the movie and he said he is a cancer patient at Mayo and they figured out right away what it was πŸ™‚ They were very nice! So, back to my day.. everyone I met was SO nice and helpful! The process is very thorough and for good reason. So far all of my results are good and I have two more days of testing next Thursday and Friday. When I was asked at what percent I was interested in doing this I said %100!!! I have worked at Mayo for two years (we came here after my sister had been working here for 30 years already!) and feel confident in the care and the people I have met have been amazing!

Enough rambling πŸ™‚ I would love prayers that the rest of my testing turns out good and I am able to proceed with donating!
Thanks!

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hopeful, if you want to post to a discussion without it being a reply (as you have done here by replying to gingerw) you can go to top of this page where you will see a blue shaded area where the Discussion is first posted. You just click the Reply and it won't show as a reply to a particular individual, but rather a free standing comment. Does that make sense?

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@hopefulgirl

(Does anyone know if there is a way to post without it being in response to another post? πŸ™‚ I am an NP at Mayo and am in the testing phase of donating a kidney. I completed the first day of testing Friday and it was so good to see what my patient's go through in a busy day!
I was blessed to be able to find my way around, but still found the day a little exhausting. The 18 hour blood pressure testing and the 24 hour urine testing made the day, umm challenging. BTW we went to a movie that night and I thought the bp machine would not be audible to others but of course it seemed to go off when the movie was quiet… the couple in front of us turned around a couple of times at first. I apologized after the movie and he said he is a cancer patient at Mayo and they figured out right away what it was πŸ™‚ They were very nice! So, back to my day.. everyone I met was SO nice and helpful! The process is very thorough and for good reason. So far all of my results are good and I have two more days of testing next Thursday and Friday. When I was asked at what percent I was interested in doing this I said %100!!! I have worked at Mayo for two years (we came here after my sister had been working here for 30 years already!) and feel confident in the care and the people I have met have been amazing!

Enough rambling πŸ™‚ I would love prayers that the rest of my testing turns out good and I am able to proceed with donating!
Thanks!

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@hopefulgirl Just go to the bottom of the page and there is a blank box to start your post. No need to do an "@" or anything. Glad to hear you have started the testing. Thank you, again!
Ginger

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@rosemarya

hopeful, if you want to post to a discussion without it being a reply (as you have done here by replying to gingerw) you can go to top of this page where you will see a blue shaded area where the Discussion is first posted. You just click the Reply and it won't show as a reply to a particular individual, but rather a free standing comment. Does that make sense?

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Rosemary, yes thank you!

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@hopefulgirl

(Does anyone know if there is a way to post without it being in response to another post? πŸ™‚ I am an NP at Mayo and am in the testing phase of donating a kidney. I completed the first day of testing Friday and it was so good to see what my patient's go through in a busy day!
I was blessed to be able to find my way around, but still found the day a little exhausting. The 18 hour blood pressure testing and the 24 hour urine testing made the day, umm challenging. BTW we went to a movie that night and I thought the bp machine would not be audible to others but of course it seemed to go off when the movie was quiet… the couple in front of us turned around a couple of times at first. I apologized after the movie and he said he is a cancer patient at Mayo and they figured out right away what it was πŸ™‚ They were very nice! So, back to my day.. everyone I met was SO nice and helpful! The process is very thorough and for good reason. So far all of my results are good and I have two more days of testing next Thursday and Friday. When I was asked at what percent I was interested in doing this I said %100!!! I have worked at Mayo for two years (we came here after my sister had been working here for 30 years already!) and feel confident in the care and the people I have met have been amazing!

Enough rambling πŸ™‚ I would love prayers that the rest of my testing turns out good and I am able to proceed with donating!
Thanks!

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I am a recipient of liver/kidney from deceased donor. So I assure you that your intention to donate a kidney is a prime example of human goodness. I would be honored to include you in my prayer intentions.
I am a very non medical person, and I was amazed at the compassion and the skill that was demonstrated by all who took care of me at Mayo.
I love your experience with the 18hr Blood Pressure cuff! I usually get caught in the middle of crossing a street when mine goes off.

I hope you will continue to update your progress here on Connect. Anytime that you want to read, or join into any of the discussions, or even begin a new discussion, I extend you a sincere welcome.
Have you visited the Transplant Pages? https://connect.mayoclinic.org/page/transplant/

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@hopefulgirl

(Does anyone know if there is a way to post without it being in response to another post? πŸ™‚ I am an NP at Mayo and am in the testing phase of donating a kidney. I completed the first day of testing Friday and it was so good to see what my patient's go through in a busy day!
I was blessed to be able to find my way around, but still found the day a little exhausting. The 18 hour blood pressure testing and the 24 hour urine testing made the day, umm challenging. BTW we went to a movie that night and I thought the bp machine would not be audible to others but of course it seemed to go off when the movie was quiet… the couple in front of us turned around a couple of times at first. I apologized after the movie and he said he is a cancer patient at Mayo and they figured out right away what it was πŸ™‚ They were very nice! So, back to my day.. everyone I met was SO nice and helpful! The process is very thorough and for good reason. So far all of my results are good and I have two more days of testing next Thursday and Friday. When I was asked at what percent I was interested in doing this I said %100!!! I have worked at Mayo for two years (we came here after my sister had been working here for 30 years already!) and feel confident in the care and the people I have met have been amazing!

Enough rambling πŸ™‚ I would love prayers that the rest of my testing turns out good and I am able to proceed with donating!
Thanks!

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@hopefulgirl the testing process is pretty amazing, isn't it?
It took me until almost the end of the evaluation to realize that all of those tests were to make sure I was safe to proceed. I had thought most of it was for the recipients information.
There were a few family members worried about my donating so I sent them my schedule of tests to show how thorough it was.
The stress test was rough for me but now that you've gotten the 18 & 24 hour tests done, everything else is easy!
I'll be thinking great thoughts for you.

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@rosemarya

I am a recipient of liver/kidney from deceased donor. So I assure you that your intention to donate a kidney is a prime example of human goodness. I would be honored to include you in my prayer intentions.
I am a very non medical person, and I was amazed at the compassion and the skill that was demonstrated by all who took care of me at Mayo.
I love your experience with the 18hr Blood Pressure cuff! I usually get caught in the middle of crossing a street when mine goes off.

I hope you will continue to update your progress here on Connect. Anytime that you want to read, or join into any of the discussions, or even begin a new discussion, I extend you a sincere welcome.
Have you visited the Transplant Pages? https://connect.mayoclinic.org/page/transplant/

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Rosemary,
Thank you for suggesting the transplant pages. I found several helpful articles there! You are such a great facilitator btw!

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@rosemarya

I am a recipient of liver/kidney from deceased donor. So I assure you that your intention to donate a kidney is a prime example of human goodness. I would be honored to include you in my prayer intentions.
I am a very non medical person, and I was amazed at the compassion and the skill that was demonstrated by all who took care of me at Mayo.
I love your experience with the 18hr Blood Pressure cuff! I usually get caught in the middle of crossing a street when mine goes off.

I hope you will continue to update your progress here on Connect. Anytime that you want to read, or join into any of the discussions, or even begin a new discussion, I extend you a sincere welcome.
Have you visited the Transplant Pages? https://connect.mayoclinic.org/page/transplant/

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@rosemarya I wore a 24 hour blood pressure monitor from Friday after until Saturday afternoon. It pumped up every half hour, hourly during night/sleeping hours, but never made any noise! I did find it annoying though. I am hoping that my BP won't be enough of a problem to prescribe medication, I think I take enough already, just no BP medication.
JK

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@contentandwell

@rosemarya I wore a 24 hour blood pressure monitor from Friday after until Saturday afternoon. It pumped up every half hour, hourly during night/sleeping hours, but never made any noise! I did find it annoying though. I am hoping that my BP won't be enough of a problem to prescribe medication, I think I take enough already, just no BP medication.
JK

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BP control plays an important role in protecting our kidneys. So as a transplant recipient it is important to monitor and/or treat. I do take BP meds and have a home monitor that I record my readings regularly.

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