1. < Kidney & Bladder

How can I control pain post surgery when I have Kidney disease?

Posted by ms9246 @ms9246, Mar 21, 2022

Asking for help? I’ve had a complete cervical neck fusion from the top of my neck all the way to my shoulders. It has affected my legs and my arms with excruciating pain. I also have stage three kidney disease. My nephrologist and PCP doctor only allow me to take Tylenol a couple of days a week. God help me I can’t have any kind of a normal life with the pain that I have in my body. Any ideas

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Mentor
Ginger, Volunteer Mentor | @gingerw | Mar 21, 2022

@ms9246 Yes, Tylenol is what the doctors want you to take when you have chronic kidney disease. If you haven't already done so, have you explained your pain situation with your medical team, to get more possible ideas from them? Is there something like a topical cream to use on the cervical fusion area? Is there a possibility of a nerve issue causing the pain? You can see I don't know much about what a fusion can cause! As a fellow kidney issue patient, though, I am well aware of the proverbial brick wall we find ourselves up against when it comes to pain management.
Ginger

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1 reply
collegeprof | @collegeprof | Mar 22, 2022
In reply to @gingerw "@ms9246 Yes, Tylenol is what the doctors want you to take when you have chronic kidney..." + (show)
@gingerw

@ms9246 Yes, Tylenol is what the doctors want you to take when you have chronic kidney disease. If you haven't already done so, have you explained your pain situation with your medical team, to get more possible ideas from them? Is there something like a topical cream to use on the cervical fusion area? Is there a possibility of a nerve issue causing the pain? You can see I don't know much about what a fusion can cause! As a fellow kidney issue patient, though, I am well aware of the proverbial brick wall we find ourselves up against when it comes to pain management.
Ginger

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My wife had her neck fused as well as her back, exactly 13 screws in her back. Mayo Clinic offers a daily 3 week program on pain management. This program helped her immensely.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 23, 2022

Hello @ms9246

I would like to invite, Rachel, @rwinney, to this discussion. She has attended Mayo Clinic's Pain Rehab Center and perhaps she can add some insight to your question. As mentioned by @collegeprof, Mayo Clinic in Rochester does offer a great programs in pain management and pain rehabilitation.

Are you familiar with Mayo's programs? Have you consulted a pain specialist in your area?

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2 replies
collegeprof | @collegeprof | Mar 23, 2022
In reply to @hopeful33250 "Hello @ms9246 I would like to invite, Rachel, @rwinney, to this discussion. She has attended Mayo..." + (show)
@hopeful33250

Hello @ms9246

I would like to invite, Rachel, @rwinney, to this discussion. She has attended Mayo Clinic's Pain Rehab Center and perhaps she can add some insight to your question. As mentioned by @collegeprof, Mayo Clinic in Rochester does offer a great programs in pain management and pain rehabilitation.

Are you familiar with Mayo's programs? Have you consulted a pain specialist in your area?

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My wife attended the program at the Mayo Phoenix Campus which also does an excellent job. I shall assume there is one in Florida as well. Teresa is correct. One should go see a pain specialist first for treatment.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 23, 2022
In reply to @collegeprof "My wife attended the program at the Mayo Phoenix Campus which also does an excellent job...." + (show)
@collegeprof

My wife attended the program at the Mayo Phoenix Campus which also does an excellent job. I shall assume there is one in Florida as well. Teresa is correct. One should go see a pain specialist first for treatment.

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@collegeprof Thanks for the corrected information. I wasn't aware that it was available on other campuses of Mayo Clinic!

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Mentor
Rachel, Volunteer Mentor | @rwinney | Mar 23, 2022
In reply to @hopeful33250 "Hello @ms9246 I would like to invite, Rachel, @rwinney, to this discussion. She has attended Mayo..." + (show)
@hopeful33250

Hello @ms9246

I would like to invite, Rachel, @rwinney, to this discussion. She has attended Mayo Clinic's Pain Rehab Center and perhaps she can add some insight to your question. As mentioned by @collegeprof, Mayo Clinic in Rochester does offer a great programs in pain management and pain rehabilitation.

Are you familiar with Mayo's programs? Have you consulted a pain specialist in your area?

Jump to this post

Hello @ms9246 Asking for help is a step in the right direction. So glad you did. The Mayo Clinic Pain Rehabilitation Center (PRC) offers help to people living with chronic conditions like yourself, post surgical pain, nerve pain, organ dysfunction.

I graduated PRC and found it to be a life changing experience that taught and provided tools to live a better life. Understanding where and how pain is derived, creating a comprehensive plan of action, both physically and mentally, and having a tool box of coping mechanisms, empowered me to accept, move forward and live my best "C" life.

Thanks @collegeprof for jumping in and mentioning that your wife had a positive PRC experience. "Helping immensely" is not an understatement when it comes to PRC. Work the program and the program works for you.

@ms9246 I'm here to help. Please ask me any questions you may have. Does PRC sound like a program you might be interested in?

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