1. < Cancer

Keytruda (urethral cancer): What's your experience?

Posted by noelles @noelles, Sep 2, 2023

Friend was diagnosed with mucinous adenocarcinoma primary to the urethra and is being treated through Stanford and UCSF. He was told that this is a very aggressive cancer. Info coming in from UCSF (after 20 biopsies) after a month gave some hope as this rare cancer mutates every 26 rounds (usual cancers 2 or 3), and that immunotherapy would give a good chance of interrupting the mutations since they are so elongated. Friend received one dose of Keytruda a month ago and had a severe hives reaction on his trunk and whole scalp peeled. Yesterday, CT Scan with contrast revealed no remaining cancer....a PET scan will be performed in 10 days at Stanford....this was only one dose of immunotherapy. Radiation was to start next week but has been put on HOLD>

Interested in more discussions like this? Go to the Cancer Support Group.

donsunlover | @donsunlover | Sep 5, 2023

While some large vitamin store may have this, it is not yet likely. Buying online seems best, Simply google "1000 mg 95% curcuminoid with Black pepper extract". Since it seems ginger is becoming a factor in this treatment, you might look for that also. Many pharma companies are getting involved because there is money to be made. Read the ingredient label. Look for trusted sources. I use GNC. Talk to your doctors.

REPLY
1 reply
samclembeau | @samclembeau | Sep 6, 2023
In reply to @donsunlover "While some large vitamin store may have this, it is not yet likely. Buying online seems..." + (show)
@donsunlover

While some large vitamin store may have this, it is not yet likely. Buying online seems best, Simply google "1000 mg 95% curcuminoid with Black pepper extract". Since it seems ginger is becoming a factor in this treatment, you might look for that also. Many pharma companies are getting involved because there is money to be made. Read the ingredient label. Look for trusted sources. I use GNC. Talk to your doctors.

Jump to this post

Thank you.

REPLY
mpuap | @mpuap | Sep 10, 2023
In reply to @noelles "so far no mets. waiting for PET Scan coming up" + (show)
@noelles

so far no mets. waiting for PET Scan coming up

Jump to this post

Could you share the name of the treating oncologist at Stanford? I’m attempting to gather treatment data on this orphan tumor.

REPLY
View MoreView Less
Please sign in or register to post a reply.