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Just scared: Cancer and scared leaving my daughter behind
My name is Heather, I am 38 years old. I had surgery/diagnosed on 10/9/24 with NSCLC adenoidcarcinoma EGFR 19. Non smoker. I have had multiple lung nodules for 15 years. We followed them for a few years, but due to how young I was and no smoking history, I was told they were benign, and follow up was stopped, unless I started having symptoms. I had bad chest pain before my surgery, which is how we found the cancer. During my surgery my largest nodule was 2.3cm with Visceral Pleural Invasion. I also had 3 tiny tumors around it, but all considered primary tumors. Therefore stage2b multifocal, I did not have lymph node involvement, no lymphovascular invasion, or airspace invasion. They believe the other nodules that have been stable for 15years are atypical adenomatous Hyperplasia. I am scared beyond belief. I have a 8year old daughter who is beautiful and she is autistic that I am scared of leaving behind. Chemo was not recommended. I went straight to Tagrisso. I don’t know what I am looking for my writing this.
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Heather- First of all, I will pray for you! Second, the fear of our Cancer returning is natural. I had lung cancer surgery for adenocarcinoma 2 years ago. March 24, 2023. After recovering from a lung surgery, I felt fantastic that they got it out. But then started understanding that Cancer can rear its ugly head again. Every time I have my 6 month check up CT scan, I get scared. NO ONE wants it again! I have decided, first of all, to give my worries to God. Second, instead of concentrating on the “what if” I decided to make plans. More or less, get things in order. Figure out who will care for your daughter if needed. Don’t just talk about it, actually set it up. That’s one thing taken care of and off your worry list. Go down the list of worries and try to set things up that will then give you the freedom to know everything will be okay and you will see that you won’t worry about those things and you can start enjoying living in the present. Eat a Healthy diet so you will start feeling good about that. (If you don’t already) But definitely make yourself some “Me” time! I have found that to be very mentally beneficial! I have raised 6 children, one is high functioning Autistic. Now that they are all 21+, I realize how worn down I was worrying about them and caring for them, just being Mom. It’s like the airplane oxygen mask. Put yours on first or you wont be able to help anyone else. I pray that you will come to peace with your situation and I pray that God will put his healing hands on you! All my best, Cindy
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2 ReactionsOh my. You’re so young. Please look into the Inherit Study. They’re studying inheriting lung cancer. Your onc maybe familiar. Sending positivity. Hoping for good outcomes.
https://inheritstudy.org/
Hello, yes I was sent to genetics. My EGFr 19 t790 was passed down to me. Not from somatic like most people. My parents are going to get tested, we have no clue where it came from.
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