Mayo Clinic Connect
I have just started using this site so this is my first message.
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor, safetyshield, luckygirl ... see all
May you fell OUR LORDS arms around you and giving you comfort. Be still and wait. Love Patti
Liked by GailBL, Volunteer Mentor
Hey jjwest you can have a big hug from me. I am new on this site and trying to find out why my tongue is causing me problems. On top of my tongue I have a white layer and under the white layer it feels like little tenticles are under there. When I rub the roof of my mouth across my tongue all this ikkey stuff comes off. I have been to my doctor he said “thrush” took a medication for it. No good. My doctor then sent me to a ENT doctor he gave my mouth throat etc a thorough exam …nothing. Went to the dentist he said just just a tongue brush. No goo. I’m at my wits end. Any suggestions
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Hello @elizabethbryant. You mentioned that you were seeing an oral surgeon on March 29th for your tongue. Did you make that appointment? What did you find out?
Liked by Teresa, Volunteer Mentor
Hi Justin, I did see Dr. James Sciubba via Amtrak to Baltimore. Dr. Sciubba studied my records and oral examination
called the surgeon, pathology, and another surgeon while I was in the office. I would have ask for a biopsy but didn’t
I found out that I do not have lichen planus and that properties of lichen planus can change. Dr. Sciubba will speak
with my surgeons etc. Dr. doesn’t do the surgery, I was disappointed with this,. I believe I should have seen
him over two years ago and I would not me in this medical situation because of poor medical care. Google Dr. James Sciubba
Liked by Teresa, Volunteer Mentor, GailBL, Volunteer Mentor
It’s really encouraging to hear that you’re moving forward toward a prognosis, and a resolution of what must be a miserable condition. Keep believing that God does have His hand on you. I’ll pray for the Spirit of peace in your heart and mind.
Thank you Jim, to me another primitive surgery, having a burlap bag sewn to my tongue is really barbaric (to hold the transplanted
flap to the tongue. It will be one year ago April 6 since the nightmare surgery which was a wave of Hell.
I am especially thankful that you are praying for the Peace that only God can give for my mind.
I am praying for His mercy. The chronic pain is a reminder the condition is there. The surgery was April 6 and mom
passed away on April 23. I think God took mom so she would not have to grieve anymore as she did over
my condition and she was alone so alone in a facility and I miss her so.
I think that for many of us, losing Mom is one of life’s most difficult times. The mother-child relationship is unlike any other.
And the peace of God is unlike any other, as well. Paul used the phrase in Philippians 4, “peace that surpasses understanding.” Even though we face multiple issues, the inner peace that we have by virtue of the presence of the Holy Spirit enables us to endure without totally falling apart. Faith can mean the difference between life and death. Prayer has intrinsic value in the healing community. And faith, prayer, music and other things like meditation and touch can contribute to better outcomes, whether we understand it or not. As a whole being, spiritual, mental and physical health contribute to each other. A wise person will cultivate all three.
End of sermon.
Liked by Teresa, Volunteer Mentor, GailBL, Volunteer Mentor, paulman58
Thank you Jim for the “sermon” I was and still am at peace with losing mom. I know where she is and I was with her when she passed.
It was a relief as I know she was very lonely and wanted her family near. She wanted to leave and there was no reason to stay on earth Long story. (My sister went with me to Baltimore this week for the doc visit via 10 hour AMTRAK she talked about mom a lot
which accounts for my thoughts of mom. I am o.k. with her absence…..there are just those times.
I took the news of my cancer diagnosis really well last February, everyone was rather taken back at my peace., this is the fist time I heard in my spirit before the diagnosis call that it was cancer, which prepared me for the news,
I have suffered bravely with this and told mom that God would give me the grace to walk through this if He didn’t heal me as mom prayed some times all night for my healing, I had been to doctors for three years and it could have been taken care of by specialists that just didn’t take the time, received poor medical care.
My family, knowledgeable in the system believe that I received such fragmented poor medical care by the same medical system that ended up doing the surgery from Hell, for lack of having another option. The issue is with the hospital (not the surgeon) know to be the worse after care in the country by U S News and World Report & World Report. (I agrees with their findings)
I praise God for the doctor specialist I saw this week, should have seen a long time ago, but lets not go there.
I agree 100% with your “sermon” . All of this peace was present before my last surgery (one year ago April 6)
The surgery was bad enough but the sewing a lump of burlap to my tongue for the flap to my severly swollen tongue
(blocking my air way.) appears to be rather primitive, 3rd world country medicine. NOW TALKING ABOUT DOING THIS AGAIN ! ! !
When I was told I would be sipping ice myself, as the doctor was stern “Doing this yourself”
and then the hospital had no “ice chips” something that simple which created many complications
in the night and steroid and possible airway tube, etc. all for lack of ice chips.
Is this the medical care across the country now as this country is in moral …decay””.
I can’t seem to get back on track which is a poor way to express it.
Touch, I live alone. Spiritual what has happened to me, where is my faith. Music worn that out.
The surgery was trauma and then
coming home on Morphine bottles and trying to think clearly on three pain killers plus the morphine.
and to tell me that I would need another surgery.
This is a bunch of Blah blah blah that I am writing so please forgive me. I am overwhelmed at times but dont
fall apart. The crying that came some length of time month or so after surgery was I learned from the meds.
I don’t have the crying now. I just stated that death would be better than to go through that surgery again.
Liked by Teresa, Volunteer Mentor, Jim, Volunteer Mentor, GailBL, Volunteer Mentor
@brit, how are things going with your tongue issue? Its been awhile since you posted your progress.
Liked by brit
@elizabethbryant, You have been through so much in the past year! I think most people would have given up a long time ago if they were facing similar problems and the death of their mothers. I commend you on your perseverance, courage, and willingness to share your experiences with us. Im hoping the best for you. Gail B
All is well. Thank you so much for your caring. I really have no idea what it was but within the last 2 weeks all seems to be back to normal.
I am still fighting my depression but even that is easier to deal with so I am BLESSED.
Everyone out there keep trucking and believing in the good LORD he does make dreams come true and I am so thankful.
GOD BLESS everyone out there just keep praying to HIM he will come through for you
Great topic to start, Georgette.
“discussing managing mental health issues as a senior, after a lifelong challenge with this disease. This issue can be further complicated as we age because many people do have memory loss and other symptoms of aging, and it is very difficult to tell the difference between life-long anxiety or depression and other mental health issues…….and age-related symptoms or conditions. Am i feeling depressed because i cannot do the things i used to do, or am i depressed because i do not have chronic depression under control?”
I’m tagging @overwhelmed @johnjames @jimhd @amberpep and @lesbatts on this discussion as I believe they will value insights or reflections to offer.
Colleen, I have been down for a few weeks- my life Gluteus torn away from the Bone and other main body- which really hurt 24/7- sorry don’t mean to whim, I know I haven’t been very active. The constant pain and added my Spine and Back -I’m wondering what’s next. The doctor think it could agent orange which is destroying the inside of my Gluteus. I’m waiting to find out from an expert when they call me. My energy level has dropped to about 30%. I really want to thank Colleen for your checking on us and your continued Kindness, knowing you have health issue yourself. I pray for you and your staff and all the help from everyone who trying to help with answers. All of you are wonderful people and God is using you in our(My) life. JJAMES
Boy Patti- I want to thank you for what you said- I believe it affects all of us, I know it does me and I just wanted you to know how greatfull I’m of you. JJAMES
I’m sorry that yet another issue has been added to your list. I’ll be praying for you. Thank you for your input here. You’re an encouragement to me.
Thanks Jim- I very much appreciate your support and prayers, please I don’t take it for granted. Question: How do you sleep at night, I can’t very well- it takes me hours to finally go to sleep- I know PTSD is part of the problems. but I guess why so many hours and to just can’t sleep. Thanks for listening and God Bless My friend. – How are you doing these days and what is the main health I can pray about for you. JJAMES>
@johnjames I’m sorry to hear of the further problems with your gluteus muscle. I can only imagine the level of your pain. Since you mentioned Agent Orange, I assume you had your initial injury in Vietnam and you’re a veteran. I deeply regret that your service resulted in ongoing pain and problems in your life. I pray for peace and comfort in your life. Thank you for sharing your thoughts and feelings with us. Gail B
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