1. < Blood Cancers & Disorders

Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Posted by markwithwildattr @markwithwildattr, Mar 14 10:40pm

Just diagnosed with wild type ATTR at 67. I have been prescribed Attruby . My only symptom is tingling in my fingers so I’m hoping it was caught early . My understanding is this drug stops the creation of the misfolded proteins created in the liver . Is there a drug that dissolves the protein already in and around the heart as seen on my echocardiogram?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

chrissteyn51 | @chrissteyn51 | Mar 25 1:29pm
In reply to @colleenyoung "Welcome, @chrissteyn51. I moved your question about medications for amyloidosis ATTR to this existing discussion to..." + (show)
@colleenyoung

Welcome, @chrissteyn51. I moved your question about medications for amyloidosis ATTR to this existing discussion to connect you with @markwithwildattr and others.

- Wild-type ATTR Amyloidosis (ATTRwt): : What meds help you?https://connect.mayoclinic.org/discussion/just-diagnosed-with-wild-type-attr-at-67/

Is this a new diagnosis for you? What treatment(s) have been recommended for you?

Jump to this post

Good day. Yes a new diagnosis and did not start yet with any medication.

REPLY
1 reply
phillipdobrien | @phillipdobrien | Mar 27 9:14am

I have Carpal Tunnel, lower back pain (mostly in the AM) & numbness in my left hand. I won't be home until mid-April to see my doctor but would appreciate any advice. Thanks to all for posting.

REPLY
phillipdobrien | @phillipdobrien | Mar 28 8:31am
In reply to @chrissteyn51 "Good day. Yes a new diagnosis and did not start yet with any medication." + (show)
@chrissteyn51

Good day. Yes a new diagnosis and did not start yet with any medication.

Jump to this post

Thank you & good luck ! Please post if & when meds are prescribed. Thanks again !

REPLY
View MoreView Less
Please sign in or register to post a reply.