← Return to Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

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Profile picture for markwithwildattr @markwithwildattr

I am currently taking Attruby (acoramadis,712 mg a day for life) which was approved for ATTR in November of 2024, It has a higher success rate than Trafamidis which was the previous drug to treat the disease. I am also in the process of entering a clinical trial (Crispr Cas 9) which is a one time infusion to stop the production of the misfolded proteins created in the liver. If this is successful, it will be a revolutionary treatment for the disease.

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Replies to "I am currently taking Attruby (acoramadis,712 mg a day for life) which was approved for ATTR..."

Thank you again. I really do appreciate your help. If I have ATTR, I hope to catch it as early as possible & your input is really important. Take Care & good luck !

@markwithwildattr ... Mark..
I have also just been diagnosed with ATTR-CM WT, just started taking Attruby 2 days ago.
I would like to hear about your journey since Nov 2024 etc. and the Crispr Cas 9 trial.