I’ve had all my hardware removed after T2-T10 fusion. Ask me anything.

Posted by lylaaaa @lylaaaa, Nov 14, 2023

I was in a car accident and fractured several vertebrae in my thoracic spine, including a T6 burst. Fused T2-T10 in 2012.
Pain was unbearable for years and never improved.
In 2017, I got all the hardware removed. Every single piece of it. Not replaced, not revised, completely removed. It IS possible.
Realistically, your pain will not disappear. You will still have bad days and worse days.
For me, though, on a good day my pain is about 50-80% less than it was. Even my bad days and awful days (which are fewer and farther between) are nowhere near the pain I experienced before getting the hardware removed.
I searched for a couple of years for info on hardware removal but the internet is not always your best option. This was my process:
I found a new primary care doctor within a large medical system (Houston Methodist) with several hospitals and clinics in my region, so that all my medical info would be portable and easily accessed by all my doctors.
I went to see her and said simply and clearly, “I want to talk to a surgeon about hardware removal.” She did some digging and referred me to an orthopedic surgeon. I told him the same thing, answered all his questions regarding my pain, and he agreed it was a viable option.
The insurance company insisted on a procedure to make sure it would work. I was referred to a pain management doctor who gave me numbing injections at every level of my fusion. I had to rate my pain levels for a week before and a week after.
They required a 30% reduction in overall pain levels to cover the surgery.
A few weeks later, I had the surgery! I was warned in advance that they might get in there and see that some or all of the hardware was still necessary, or would be unable to be removed. Luckily, that didn’t happen. All the hardware was removed. Surgery took about an hour!

It was absolutely the single best decision I have ever made. Am I still in pain? Absolutely. Is it anywhere near the kind of pain I experienced daily before the removal? Not even close.
Hardware can removed about a year after fusion, but there is a point at which it can no longer be removed. I recommend seeing a surgeon sooner rather than later. If your doctor says no, go see another!

Photo of my removed hardware is attached (yes, I got to keep it lol).

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Profile picture for bassetmom @bassetmom

Are you saying you wish you'd never had the fusion? I, for one, am facing the option of fusion surgery, T-10 to pelvis but I read these horror stories and I'm pulling back. I've been to several neurosurgeons and all but one said, don't do it unless your pain is so bad you'd rather die. Well, my pain is not that bad, I just cannot walk far anymore without using a grocery cart or some such aid. So, do you wish you had never had the fusions? Just curious if you could say where your fusions were done, Houston?

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@bassetmom Hi I had T4-S1 fused. In Houston 3 years ago and wish I had it done sooner. I have read the stories of people with bad experiences. I am on the on the other end my experience was great I have very little pain. Once in a while some stiffness, I ca take a Tylenol. I was 58 when I had surgery. There are really bad outcomes and really good ones and probably many in between. If you are in the Houston area. I went to Dr. Rahman at Houston Scoliosis and Spine Institute. If I didn't have surgery would be walking . I was only able to walk about 30ft. Good luck

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thank you, sherij. I wondered why so many neurosurgeons are discouraging this. And I am reluctant to have metal in my back and restricted mobility from that. How old were you at the time and if you don't mind m asking, did you have it done at a big, well-known medical center by a prominent, well-respected neurosurgeon? I'm wondering how much that factors into someone's success.

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Profile picture for bassetmom @bassetmom

Are you saying you wish you'd never had the fusion? I, for one, am facing the option of fusion surgery, T-10 to pelvis but I read these horror stories and I'm pulling back. I've been to several neurosurgeons and all but one said, don't do it unless your pain is so bad you'd rather die. Well, my pain is not that bad, I just cannot walk far anymore without using a grocery cart or some such aid. So, do you wish you had never had the fusions? Just curious if you could say where your fusions were done, Houston?

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@bassetmom I had a multi-fusion complex spine surgery - 2 parts 3 days apart - T-11 to S-1 December 2021. I was in so much pain, I didn’t want to die but I started to understand why someone with this amount of pain constantly, would. I had a neurosurgeon who was an expert in a Seattle hospital. I have never regret the surgery. It was a long recovery - I guess, but I’m not in pain. I have some discomfort if I sit too long on the wrong kind of chair but it’s not terrible; I can walk long distances, and do almost everything I used to do. Though I still have some numbness in one of my feet, I chalk that up to waiting too long for surgery - nerve damage. Not sure if that’s typical. I’m happy and looking forward to seeing my surgeon for my 5-year checkup.

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Profile picture for ehv @ehv

@bassetmom I had a multi-fusion complex spine surgery - 2 parts 3 days apart - T-11 to S-1 December 2021. I was in so much pain, I didn’t want to die but I started to understand why someone with this amount of pain constantly, would. I had a neurosurgeon who was an expert in a Seattle hospital. I have never regret the surgery. It was a long recovery - I guess, but I’m not in pain. I have some discomfort if I sit too long on the wrong kind of chair but it’s not terrible; I can walk long distances, and do almost everything I used to do. Though I still have some numbness in one of my feet, I chalk that up to waiting too long for surgery - nerve damage. Not sure if that’s typical. I’m happy and looking forward to seeing my surgeon for my 5-year checkup.

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@ehv I want to add that I was 70 when I had this surgery & my doctor is an expert in this specific surgery. I went back to the gym as soon as I was cleared by my doctor and PT (a few months). My only regret is that I didn’t do it sooner.

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this is not an easy decision, reading so many personal experiences, positive and negative. So much is subjective, each person's condition going in, finding the right surgeon, and facility. My thanks for all the honest comments.

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