Mayo Clinic Connect
Am yeye2020my son has been battling with seizure for 22 years and he was under carbamazepin -Tegretol.please, is there total cure for seizure
I don’t believe there is an absolute “cure” but I’ve known people who had surgery and haven’t had any more seizures. One guy seizure free for 25 years and another for 45 years. They probably consider themselves cured but who knows, some people go decades between seizures. I always felt Epilepsy is controlled not cured. I don’t remember any docs or researchers mentioning a “cure”
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Hi yeye2020. I would say yes. I have come across people who had surgery done and are now free from seizures for many years and no longer on medication. That is cure for me. My 18 year old daughter who has been epileptic for 12 years, just had a modified hemispherectomy done. She is now recovering but unable to have physio due to terrible pain in her right hand and foot. Has anyone had or heard anyone who has undergone this procedure?
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Hi Anna @ndapanda,
I'm bringing @patrassi into this discussion. Her son had a hemispherectomy and may be able to share their experience with you.
Anna, did the surgeons suggest that the pain in her right hand and foot is temporary?
Hi @yeye2020, welcome to Connect. I agree with @jakedduck1 that most medical professionals refrain from using the word cure. Instead they will use phrases like seizure-free or well-managed epilepsy.
@yeye2020, what type of epilepsy or seizures does your son have?
Liked by Teresa, Volunteer Mentor
@ndapanda and @patrassi I just realized that the 2 of you have already connected here: https://connect.mayoclinic.org/discussion/brain-surgery/
Hi @ndapanda ,
My son had a hemispherectomy done in February 2017. He is now 7 years old , and he still claims about pain in his foot eventually. Just after surgery he was able to have physio, but then his right hand started to be painful . He usually gets cramp and pain in his foot . I Really think it is some side effects of the surgery, some kind of neuropathy … I don’t know if I was helpful here…
Best wishes for your daughter! Health and Peace.
Yes, they did suggest that it is temporary. We are now doing physio for arm and leg and hand is in a splint. It is going fine but the pain is the problem
You were helpful, thank you very much. That gives me hope!
Hello my name is Susan, I'm 51 and had a implant to stop my grand mal seizures now I need to stop my pedimal ones.
What type of implant did you have? RNS, Vegal nerve?
Welcome to Connect, where you can meet others living with seizures and epilepsy. You'll notice that I removed your personal phone number from your message. I did this because Mayo Clinic Connect is a public website and we don't want you to get unwanted phone calls. See the Guidelines on using Connect Safely here: https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/
Should you wish to inquire about treatment for petit mal seizures, please contact Mayo Clinic at one of our 3 campuses in AZ, FL or MN mayocl.in/1mtmR63
Susan, are the petit mal seizures a recent development for you?
Susan…..What type implant did you get?
Oops….I meant Vagus Nerve Stimulator
Some people like my sister out grew her seizures only when she became older she had a stroke she was a smoker and a drinker this is what caused her to have a stroke she was 4 years old when she acquired seizures due to a fall at 4 years old.
HI My Name is Br Jude Vo. I am 39. I have had seizures since I was 7. I am on topamax 200, Keppra xr 750, & Tegretol xr 400. I have been on this combination now for almost 6 years. It has stopped my seizures but the side affect is that I have really bad memory. I would like to go back to college But I am hoping I can have the surgery & get off of the meds so I can go back to school. any suggestions? Help!!! does the Vagus Nerve Stimulator work in place of meds?
Liked by Leonard
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