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Is neuropathy a Tymlos side effect?
I've just been on this drug a few weeks, but developed pins and needles in my arms and legs all over. I don't know if it's drug related...it comes and goes, but really uncomfortable. Anyone else experience this? It's not listed as a side effect. I do get the common nausea, dizziness, headache also but those subside after a while.
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I've been on Tymlos for 18 months and while I never had that side effect, I did find calling their patient help line helpful. I had weird right upper quadrant pain for a while & was never sure if it was because of the drug or starting Pilates about the same time & not breathing right. Luckily it was mild and subsided pretty quickly.
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1 ReactionWhen I was on Tymlos 2022-2024, I had tingling in feet often and hands occasionally. The tingling has stopped but I have pain in my feet when putting on sneakers/shoes. Didn't realize that both could be related to osteoporosis meds. Thanks for bringing this to our attention.
Has anybody tried any non-prescription meds, ointment, etc to address the above symptoms?
I was considering talking to podiatrist about my feet discomfort. I will ask my Endo doc.
I have tried things like GABA, skullcap, valerian, ALA for neuropathic symptoms. They help a little....but not significantly. Lion's Mane mushroom is supposed to support nerve health too. There really aren't any topicals OTC I found for nerve pain. You could try to get a dr to order a compounded topical formula of gabapentin if the nerve pain is localized. Mine has been all over my body so that wouldn't be practical. I can't tolerate gabapentin or lyrica in a high enough dose to make any difference for nerve pain. Plus, I don't go along with the idea of taking a drug to cover up the side effects of another. Low blood calcium can cause neuropathy I've read...though that seems to be the opposite of what Tymlos is supposed to do.
tkdesign,
hypercalcemia can cause neuropathy. Tymlos can cause hypercalcemia. You might be able to work around it by lowering calcium, D, or Tymlos intake. Not a very helpful comment.
My endocrinologist said they had not heard of neuropathy as a side effect. I had my calcium levels checked and it was not high since taking the drug, it was actually much lower than normal for me. I am so confused as to what this drug does to calcium levels and I would imagine it's different for everyone due to your calcium intake, metabolism, etc. What I hear from others and what I research myself I find all different answers as to what causes what. It's not helpful that most drs don't even know.