Is neuropathy a Tymlos side effect?

Posted by tkdesign @tkdesign, May 3, 2025

I've just been on this drug a few weeks, but developed pins and needles in my arms and legs all over. I don't know if it's drug related...it comes and goes, but really uncomfortable. Anyone else experience this? It's not listed as a side effect. I do get the common nausea, dizziness, headache also but those subside after a while.

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tkdesign | @tkdesign | Mar 20 8:41am

In reply to @cassie5111 "@tkdesign hi, I’m sorry this happened to you. Do you have any updates on your experience?..." + (show)

@cassie5111 I think i had an autoimmune reaction develop. I already am dealing with autoimmune problems from EBV and arachnoiditis, so my body is just wired to react to things. Unable to use steroids, so have struggled to find a way to combat this.

cassie5111 | @cassie5111 | Mar 20 12:43pm

Was gbs ever confirmed with your situation?

tkdesign | @tkdesign | Mar 20 1:18pm

In reply to @cassie5111 "Was gbs ever confirmed with your situation?" + (show)

@cassie5111 No

hdeff | @hdeff | Mar 21 10:06am

In reply to @seh801 "I've been on Tymlos for 18 months and while I never had that side effect, I..." + (show)

@seh801 was it like a stitch in your side? I'm having that and now I'm wondering if it's related.

seh801 | @seh801 | Mar 22 9:07am

In reply to @hdeff "@seh801 was it like a stitch in your side? I'm having that and now I'm wondering..." + (show)

@hdeff Yes, it was a similar feeling. It was mild, but something noticeable. I never did figure out if it was related or not. I reported it to my doctor & to the Tymlos help line, but since it was mild and occasional neither were concerned enough for me to stop Tymlos.