1. < MAC & Bronchiectasis

Is Mayo in Jacksonville as good as UT or Natl Jewish Health for NTM?

Posted by dls224 @dls224, Aug 27, 2023

I’m trying to figure out which hospital to go for secondary diagnostics and treatment plan.

I do have altitude issues but I assume that could be managed to go to NJH in Denver.

UT is closer to me being in South Florida and a strong consideration also. It will come down to how soon I can get in also! I’ve only just had my first positive AFB result so I don’t want to start any treatment until I go to a center of excellence for this.

I don’t know if UF is any good or not ?

All advice is welcome please!!! Head spinning this morning!

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

dls224 | @dls224 | Aug 29, 2023
In reply to @bee1950 "Hi, I just wanted to add that I am also a patient at Mayo Jax where..." + (show)
@bee1950

Hi,
I just wanted to add that I am also a patient at Mayo Jax where I asked for a second opinion in Jan. 2018 after diagnosis with MAC & bronchiectasis in Nov. 2017. Like SallyB I was originally a patient in the Baptist system but after my Dr there retired, I decided to become a patient at Mayo. I have been very happy with my care there, but will mention that airway clearance wasn’t suggested until I had experienced ongoing hemoptysis. As often indicated on this site, we are all different, & hemoptysis has been the major symptom of my condition. It now rarely occurs & I believe that airway clearance has kept me well.

I’d also like to mention that I’ve asked my Mayo pulmonologist for several referrals & have been pleased with each Mayo specialist that I have seen there.

I see my pulmonologist annually & usually have a CT, sputum test, bloodwork, & pulmonary function test beforehand. I also know that I can contact my Dr. as needed and get a timely response.

Just keep reading & learning, stay as active as possible, rest as needed, eat well, & have a great day!
Take care,
Linda

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Thank you Linda!!

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