Is chronic reactivated EBV different from chronic active EBV?
I was just told I tested positive for all Epstein Barr Virus tests, except for the one that says you were recently infected. I was told I have Chronic Reactivated Epstein Barr Virus, and that I would be referred to an infectious disease doc. I started to research and everything keeps coming up with Chronic Active Epstein Barr, which seems to be a rare form and serious. Are these two forms different?
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I don't know what all the numbers mean but here are mine….EBV VIRAL CAPSID AG (VCA)
AB (IGM) 46.70………EBV VIRAL CAPSID AG (VCA)
AB (IGG) 298.00…..EBV NUCLEAR AG (EBNA)
AB (IGG) 51.60………..Maybe someone can help
Everybody has different symptoms so try not to worry too much . I’m on month 7 and the last 2 months since I stopped working out are by far the worst. I so feel your pain as I live alone and no family around . Trying to rest and get better but I’m so fed up too. Let us know if you’re doing any better as this post is from September .
I’m taking Valtrex and loads of immune boosting supplements … drinking celery juice eating healthy …. that’s the best I can do right now
There’s no help …. I’ve been to one . It has to just go in its own time … there is no cure apart from rest eating healthy that’s all we can do
@chickie001 Hi. You would need to post the reference ranges that are on your lab report. Different labs do these titres differently and have different reference ranges. So a result from one lab may mean something totally different than that same result from another lab
EBV VIRAL CAPSID AG (VCA)
AB (IGM) 46.70 H U/mL
U/mL Interpretation
—- ————–
43.99 Positive
EBV VIRAL CAPSID AG (VCA)
AB (IGG) 298.00 H U/mL
U/mL Interpretation
—- ————–
21.99 Positive
EBV NUCLEAR AG (EBNA)
AB (IGG) 51.60 H U/mL
U/mL Interpretation
—- ————–
21.99 Positive
Sorry. For some reason the ranges didn't post.
EBV VIRAL CAPSID AG (VCA)
AB (IGM) 46.70 H U/mL
U/mL Interpretation
—- ————–
43.99 Positive
EBV VIRAL CAPSID AG (VCA)
AB (IGG) 298.00 H U/mL
U/mL Interpretation
—- ————–
21.99 Positive
EBV NUCLEAR AG (EBNA)
AB (IGG) 51.60 H U/mL
U/mL Interpretation
—- ————–
21.99 Positive
Hi Magbatt-I've been diagnosed with re activated EBV and am planning to start the supplements you mentioned. How many times daily have you been taking them?
Thanks!
Sharyld
@chickie001 Thanks for posting the reference ranges. It looks like they are all elevated so likely an active infection with EBV. The IgM antibodies are positive when there is an active infection but not always. IgG will usually remain elevated for life even in healthy individuals. I'm glad your doctor actually recognized that the EBV is active. Mine told me to exercise despite having extremely elevated titers across the board and debilitating symptoms. She's no longer my doctor, of course! Again, http://www.ebvhelp.com is a good resource, along with http://www.rawlsmd.com. Listen to your body. THIS IS NOT AN ILLNESS THAT IMPROVES BY PUSHING YOURSELF! I've learned that the hard way. ….God bless
Thank you for the information. I will definitely check out the websites. Actually I asked my PC to do the bloodwork then he would not refer me to anyone. I was still sick 2 weeks later and he was booked up so fortunately for me I got to see his PA. She was great!! Explained the lab results and said….I don't care if he won't refer you but I am….you are sick and we need to know why it keeps reactivating. Will keep you updated.
I am 20 years old, I got mono for the first time in 6th grade. It reactivated in high school and my doctor says I got meningitis from it. I've now had mono 12 times and I have yet to find a doctor who knows anything more than to rest and drink water. I have had so many complications- unexplained weight changes, HUGE spleen swelling, septic tonsils, neck and back pains. I need some answers or suggestions at the very least. What have others found that helps? Has anyone found a doctor who takes this seriously?
Hello @yomynameischlo, welcome to Connect. Getting diagnosed with mono 12 times in what sounds like an 8-year span must be a lot to deal with. While we wait for the other members of this discussion to share their experiences with you, would you be comfortable sharing a bit more with the group? Do your providers think all of these complications are connected? How have you tried to manage the symptoms?
This discussion may also be worth taking a look at and participating in as well, https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/.