Is anyone using LDN (low dose naltrexone) for fibro pain?

@daisy17 hi, I’m keen to know how the Cyclobenzaprine is for fibromyalgia’s pain, I read that it’s recently been approved for use in fibromyalgia, but you’re taking low dose naltrexone also? So far nothing has worked for my pain, I was given Laroxyl but just 2 drops of it would make me feel groggy the next day, it also did’t do anything for my pains. I don’t wish to take lots of different things, as I already take a monthly injection for migraines and cymbalta for anxiety.

I know people including a surgeon taking cymbalta for neuropathic pain and he can’t function without it. I was put on it for anxiety and fibro, but it didn’t do anything for my pains no matter how high the dose was. Side effects really vary person to person, I’m quite sensitive to medication but can tolerate cymbalta. I had more side effects on Effexor, and the side effects usually wear off after 4-6 weeks aside from weight issues. Weight issues again differs from person to person. Since Tonmya should be out in the US now, perhaps it would be worth looking into that drug over others, it’s the first medication in 15 years to be approved for fibro.

@sheevym
I would recommend trying the low dose naltrexone first. You have to get it from a compounding pharmacy. You start with a very low dose, like .5 mg and slowly work up to a maintenance dose, usually 4.5 mg. Then it can take 2-3 months to notice results. I think it helps me and take it every day even when I'm not in a flare. The cyclobenzaprine helps me with pain and sleep when I'm in a flare. You'd have to ask your Dr about taking it along with Cymbalta though.

@daisy17 thank you. My doctors have discussed both low dose naltrexone and Tonmya which is cyclobenzaprine, is yours sublingual? My psychiatrist goes to a conference in the Us every year where they discussed nasal esketamine and Tonmya, and he’s upset we can’t get these in London or Europe. I’m trying to get the medication from the US, but just feel dubious about taking even more meds :s despite the migraine injections being a lifesaver! Does the cyclobenzaprine work immediately? I don’t think I have the patience for low dose naltrexone

My cyclobenzaprine is not sublingual. I read that makes little difference. I feel the effects quickly enough with the .5mg pills and they are generic, so inexpensive.

I suggest you re-consider the low dose naltrexone. I think it's helped me and is worth trying, even though you have to work up slowly to the maintenance dose. There are no side effects, like many of the other drugs for fibromyalgia.