Is anyone taking Xcopri?

@santosha -- Chris Gautier--Thank you so much for responding and for doing so in an authentic, informed and friendly manner.
I'm going to copy your reply & give to my son. ------- Because I take "LMNT' electrolytes, daily, for a different challenge, 2 weeks ago I recommended this to
my son. He really liked it from the 1st sip--so he's been regularly drinking since then... The neurologist knows this. ---She didn't recommend anything else.
LMNT is a wonderful convenience, but now that both son and I are using it--I'm interested in making it in my kitchen.
Would you please share your recipe for home-made electrolyte drink?

My pleasure! @bearbayou
Here is the recipe for my homemade rehydration solution:
1 liter of mineral water
1 level teaspoon of salt (3.5g)
2 level tablespoons of sugar (20g)
Fresh coconut water (not processed/commercial) can also be an excellent alternative if it's available in your region of the US.
Would it be interesting for your son to join our group as well?
Wishing you a nice weekend!
Chris

Hi @kariabrown and @lzbthtyler
It would be very nice if you could share your experience with Xcopri in the discussion that @lynn0225 has started.
Thank you!
Chris

@santosha
Thanks for the recipe.
Surely other readers will benefit. (Unfortunately,
Mineral water is a problem for my digestive system.)

My pleasure @bearbayou !
Here's an improved version:
Wow, I'm surprised to hear that mineral water causes digestive issues for you - that's the first time I've heard of this!
I was curious to learn more, so I did a quick search and discovered that while it's usually well-tolerated, some people can indeed have digestive problems with it. I'm sorry you're dealing with that!
The good news is you can definitely make this recipe with regular filtered water instead - it'll work just as well!
Does your son have the same issues with mineral water, or does he tolerate it okay?
Chris

Hello! I have been taking Xcopri for almost 5 years now. I began taking it after a craniotomy and removal of what they had hoped was my seizure focus. They got most of it, but due to them not being able to get it all without losing some vision, I elected to stay on meds. Long story, short…I honestly can’t remember what my starting dose was but I was TIRED, even when taking it only at bedtime. I am now at the maximum dose of 400 mg a night. When I tell you, it has been a struggle, oh boy! Despite the fact that I now have to take a different med to stay awake during the day, Xcopri has kept my seizures more controlled than any of the many other meds I have been on. And the drowsiness seems to be the only side effect for me. And most anti-seizure meds pretty much cause drowsiness. Now, as I tell you this, I can also say that my seizures have been less controlled lately. However, my neurologist has been digging into this, and the cause seems to maybe stem more from the surgery than anything else. The Xcopri is still doing its job for the most part

Hi @kariabrown
Thank you so much for sharing your Xcopri experience in our group, this is much appreciated!
You're absolutely right; drowsiness is such a common side effect with so many AEDs. I've experienced it myself and still struggle with it.
What's made a real difference for me is my daily yoga nidra practice—just 30 minutes can be equivalent to about 3 hours of deep sleep—followed by a short nap right after lunch. Together, these really help me manage my fatigue.
Have the medications your doctor suggested been helping you stay more alert? And have you tried incorporating short naps into your day to see if that eases the tiredness?
Wishing you all the best as you and your doctor work on getting your seizures under control again!
Chris

@kariabrown
Something just occurred to me—seizures themselves can really drain our energy.
Do you think you're feeling more tired now because your seizures aren't as well controlled, or has the tiredness been pretty constant since you started Xcopri?
Chris

@randallshields56 took a couple weeks but made me feel better and same time anxious to get meds away not increase them. But no seizures since increase. I also learned that once I find myself feeling rough, find a quiet place and relax. Think about something like a walk on a trail. The sounds, smells feel of the ground under my boots, anything I could remember
If I took a nap so be it if not at least I felt more relaxed.

That was a smart doctor. Only problem with decreasing medicine is that you taper off, too suddenly or two much can cause more issues. I'll send you a prayer 🙏 from no more seizures. Have a blessed day 🙏