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Is anyone taking Xcopri?
My husband is on a new medication, Xcopri. I was wondering if anyone else is taking it.
He had his first seizure at the end of April 2025. He is 72 years old. The doctor who saw him at the hospital prescribed 1000 mg of Keppra twice a day. It made him very drowsy. He asked about having the dose lowered but the doctor said he couldn’t guarantee that a lower dose would keep him from having a seizure. My husband changed doctors.
The new doctor put him on Xcopri. He takes it at bedtime so he isn’t drowsy during the day.
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@randallshields56
Hi Randy,
Thank you so much for sharing that with me and our group—I really appreciate you opening up!
It sounds like we have something in common! When I sense a seizure coming on, I do the same thing—I stop everything and focus on my breathing, along with some techniques I've learned through the Andrews-Reiter approach. It has been really helpful. I actually shared more about it recently in this discussion if you'd like to check it out:
https://connect.mayoclinic.org/comment/1422302/
I also have to work harder to stay focused on tasks, and I've noticed some memory challenges too. From what I understand, my type of epilepsy—temporal lobe with mesial sclerosis—can affect memory. Add to that the fact that AEDs themselves can also impact memory and concentration.
I'm curious—would you mind sharing what type of epilepsy you have? I have temporal lobe epilepsy, which is known to be a highly refractory type. Unfortunately, my current AED isn't controlling my seizures anymore, even after increasing the dosage, so I might need to switch again.
Chris
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1 Reaction@santosha
right now .25 three times a day 9am-3pm-9pm
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2 Reactions@santosha
was doing .25 twice a day. if things stay the way they are I'm going to try to go back to just two times a day.
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2 Reactionsthank you for your mention,
they raised it .25mg i really didn't want the increase but so far haven't had any seizures, couple times I thought i was getting ready to have one because i have had so many. earlier stages i had enough time alone to study how my body reacts and i can step back, take a deep breath or a few and calm my heart rate down. that's a big help. just to calm yourself and focus on something you enjoy thinking of. Don't have anyone to wine and dine and lost my wife in 2010 so family is what i have. have noticed i have to try harder to focus on current things that i am doing or forget and have to go back and complete what i was working on. family i have here are gone most days working so get some me time. hope i helped some. other than that i don't feel any new effects.
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3 Reactions@randallshields56
Hi Randy,
I'm so glad to hear that your seizures are now controlled and that you're still doing ok after this dose increase!
If you're comfortable sharing, what's your current dose? Have you noticed any side effects since it was raised?
Chris
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My husband is on 100 mg once a day. He takes it at bedtime.
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1 ReactionDue to a couple seizures unexpected they uped my dose, but I am doing ok with it. Going to see if I can get it lowered back to. 25
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2 Reactions