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Is anyone taking Xcopri?

Epilepsy & Seizures | Last Active: Mar 24 4:18pm | Replies (77)

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Profile picture for Randy Shields @randallshields56

@santosha
right now .25 three times a day 9am-3pm-9pm

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@randallshields56
Hi Randy,
Thank you so much for sharing that with me and our group—I really appreciate you opening up!
It sounds like we have something in common! When I sense a seizure coming on, I do the same thing—I stop everything and focus on my breathing, along with some techniques I've learned through the Andrews-Reiter approach. It has been really helpful. I actually shared more about it recently in this discussion if you'd like to check it out:
https://connect.mayoclinic.org/comment/1422302/
I also have to work harder to stay focused on tasks, and I've noticed some memory challenges too. From what I understand, my type of epilepsy—temporal lobe with mesial sclerosis—can affect memory. Add to that the fact that AEDs themselves can also impact memory and concentration.
I'm curious—would you mind sharing what type of epilepsy you have? I have temporal lobe epilepsy, which is known to be a highly refractory type. Unfortunately, my current AED isn't controlling my seizures anymore, even after increasing the dosage, so I might need to switch again.
Chris