Invasive ductal carcinoma (IDC): Anyone else?

Posted by 6750 @6750, Mar 2, 2019

I have rec’d 4 chemo + 16 radiation treatments for invasive. Has lumpectomie 1st....then one week later...
Dissection 17 lymph nodes & 3 tumors removed tumors
Got clean margin.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

I was diagnosed with IDC in September 2022 at age 70. Biopsy removed entire tumor, 3 mm. Had lumpectomy, clean margins, sentinel nodes negative. Because tumor so small oncologist didn’t recommend Oncotype test as used for 5 mm and up. No chemo recommended, chose not to have radiation. Will be followed with annual mammograms which actually saved my life. On Arimidex for at least 5 years plus Fosamax for 2 as bones show osteopenia in femurs and AI weakens bones. Arthritis feels a bit worse but not terrible. Started 1000 mg turmeric daily and green tea extract last month. Greater problem every day is total knee replacement from 2021 that hasn’t healed well. Facing another surgery but will be arthroscopic which I hope recovery will be less. Always something!

REPLY
@mslennette66

Hi I’m so glad I found you guys .. I was just told that I had Ductal incinoma and I felt so alone and lost 😞 my daughter and I Goggled this and I’m still trying to process this information. So I’ll be meeting with the surgeon 01/15/2023 and I presume that we will go over plan of treatment what stage… but the reason I responded to your comment because of the type of treatment you decided to take which is the one I’m leaning towards if this is an option for me .. I pray for you as well as all the ladies on this site.

Jump to this post

Hi @mslennette66 and welcome. What a beautiful smile you have. I hope you'll upload your picture to your profile too. A hello to your helpful daughter too.

How did your meeting with the surgeon go? Have you decided on the best course of treatment for you?

REPLY

Hi everyone -
I'm confused as I (57 yrs) recently finished radiation (invasive Lobular -2cm , grade 2 ILC, strongly ER+, PR+, HER2 neg, 0/1 SN) after lumpectomy . My onco was 14 so skipped chemo, and started Letrozole. I saw NP at Dana Farber yesterday for 6 month follow up and she scheduled a diagnostic mammo for Oct (year after initial diagnosis). I never received any info on tumor markers, this Ki-67 you're all referring to. Is this something that should have been reviewed? Also I mentioned that with my dense breasts, why am I waiting an entire year before another scan/mammo and the NP said the oncologist feels "prior studies showed that a 3D mammogram 1 year after the last study was the best approach – mammograms done 6 months after surgery did not add anything."

I realize that MRI seems to be best for dense breasts but onco said not necessary unless mammo finds something. Any thoughts/comments much appreciated!

REPLY
@semurrey

Hi everyone -
I'm confused as I (57 yrs) recently finished radiation (invasive Lobular -2cm , grade 2 ILC, strongly ER+, PR+, HER2 neg, 0/1 SN) after lumpectomy . My onco was 14 so skipped chemo, and started Letrozole. I saw NP at Dana Farber yesterday for 6 month follow up and she scheduled a diagnostic mammo for Oct (year after initial diagnosis). I never received any info on tumor markers, this Ki-67 you're all referring to. Is this something that should have been reviewed? Also I mentioned that with my dense breasts, why am I waiting an entire year before another scan/mammo and the NP said the oncologist feels "prior studies showed that a 3D mammogram 1 year after the last study was the best approach – mammograms done 6 months after surgery did not add anything."

I realize that MRI seems to be best for dense breasts but onco said not necessary unless mammo finds something. Any thoughts/comments much appreciated!

Jump to this post

Just to reassure you, ki67% is included in the Oncotype test and your results were low at 14.

REPLY
@semurrey

Hi everyone -
I'm confused as I (57 yrs) recently finished radiation (invasive Lobular -2cm , grade 2 ILC, strongly ER+, PR+, HER2 neg, 0/1 SN) after lumpectomy . My onco was 14 so skipped chemo, and started Letrozole. I saw NP at Dana Farber yesterday for 6 month follow up and she scheduled a diagnostic mammo for Oct (year after initial diagnosis). I never received any info on tumor markers, this Ki-67 you're all referring to. Is this something that should have been reviewed? Also I mentioned that with my dense breasts, why am I waiting an entire year before another scan/mammo and the NP said the oncologist feels "prior studies showed that a 3D mammogram 1 year after the last study was the best approach – mammograms done 6 months after surgery did not add anything."

I realize that MRI seems to be best for dense breasts but onco said not necessary unless mammo finds something. Any thoughts/comments much appreciated!

Jump to this post

I was just diagnosed this week with invasive lobular carcinoma. Strongly ER+, PR+ HER2neg. Nothing showed on 2 mammograms or with 2 ultrasounds. I was told to wait 6 months and repeat mammogram. I had a distinct lump and insisted on a referral for biopsy and so here we are. Based on my experience, I would do the MRI (I am having one next week to, I think, determine how far the ILC has spread to help formulate a treatment plan). May I ask how long your radiation was? And again, I would not rely on a mammogram. Take care.

REPLY
@windyshores

Just to reassure you, ki67% is included in the Oncotype test and your results were low at 14.

Jump to this post

3D Mammo and ultrasound did NOT find two large tumors in one breast. I was symptomatic and strongly requested an MRI.. and three biopsies later =IDC

Now, post unilateral mastectomy I am monitored annually with MAMMO and MRI alternating every 6 mos.

Certainly in my case, with dense breasts, MRI is the detection of choice. IMO it should be standard as it finds tumors hiding in dense breasts.
Your health care professionals will make choices based on your profile but self advocacy for MRI is an option too. Best to you and to all of us negotiating this journey. 🌸

REPLY

Thanks for all your feedback! I will reach out again to my oncologist regarding an MRI - waiting an entire year for any scan after ILC seems to be contrary to everything I've read. The NP said MRI would only be ordered if I had the BRAC gene which I didn't.

To @baylaurel, I was able to skip chemo after lumpectomy (2cm , stage 1) given Oncotype score of 14. One month post surgery I had 19 radiation treatments and now on Letrozole (been 3 months). Best of luck and keep us posted.

REPLY

Dear onlines friends,
I am from Papua New Guinea and I was digonose with Ductual Carcinoma today and was really scared.

I am still thing on how I will go through as cure that illness. Is someone out there being digonose with same issue?

REPLY
@roncii

Dear onlines friends,
I am from Papua New Guinea and I was digonose with Ductual Carcinoma today and was really scared.

I am still thing on how I will go through as cure that illness. Is someone out there being digonose with same issue?

Jump to this post

Many of us on the breast cancer threads have had ductal carcinoma: it is the most common form of breast cancer. After your surgery there will be tests on the tissue that guide treatment. This is the hardest time, when you are waiting for a plan. Many of us also are doing well years after diagnosis.

REPLY
@roncii

Dear onlines friends,
I am from Papua New Guinea and I was digonose with Ductual Carcinoma today and was really scared.

I am still thing on how I will go through as cure that illness. Is someone out there being digonose with same issue?

Jump to this post

Welcome @roncii, I moved your question about ductal carcinoma to this existing discussion:
- Invasive ductal carcinoma (IDC): Anyone else? https://connect.mayoclinic.org/discussion/invasive-duct-ca

Click the link to read previous posts and to connect easily with other members like you. What treatment options are you considering? What questions do you have?

REPLY
Please sign in or register to post a reply.