Invasive ductal carcinoma (IDC): Anyone else?

Posted by 6750 @6750, Mar 2, 2019

I have rec’d 4 chemo + 16 radiation treatments for invasive. Has lumpectomie 1st….then one week later…
Dissection 17 lymph nodes & 3 tumors removed tumors
Got clean margin.

Liked by trixie1313

If you have/had invasive ductal ca please explain what to expect? I am have no info for this.

@trixie13

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Hi there – I underwent my first lumpectomy last July and it showed invasive ductal cancer with 2 positive notes, one of which had eroded. I underwent 4 cycles of carboplatin and taxol every 3 weeks. Following that it was necessary to go back for a second lumpectomy as the margin was to close. In the meantime, I underwent MRI breast and a second lesion was noted and biopsied showing neuroendocrine cancer. The second lumpectomy was performed removing the remainder of first lesion as well as all of the second lesion and, in addition, the surgeon and plastic surgeon performed a reduction and reshaping of that breast as well as reduction of my other breast taking me down from an F+ to between a B and A cup — finally, I can eat at a table without my breasts being on the table! Following healing from this, it was necessary to have 30 radiation treatments including the neck area due to the erosion of the one sentinel node. Chemo was not my favorite as I do not do well with drugs; however, I kept a journal and so after the first infusion, I knew what side effects to expect each time. Main thing I learned was to take Gas X due to the gas pains from chemo, reading material in the bathroom for diarrhea, have diarrhea medicine handy, and to keep telling myself to not be so hard on myself. Tubes from my second surgery hurt like heck, but my method to get through that was to mark each day off on the calendar and do a countdown. Radiation burns and blisters were doable by using calendula cream several times a day, aloe gel, and when blistering using prescription Silvadene ointment. I am told the invasive ductal cancer has a good outcome. However, for me when they found the neuroendocrine, it puts a whole new spin on it as it is quite rare, only 2% of the population getting this. I have had a PET scan done last night and await the results. I've been told for best chance of survival that I will need to do more chemotherapy with agents used for lung cancer of 4 cycles, 3 times a week. Just when my hair has grown back nicely, too. You will do fine – have patience. Your breast care coordinator should have information for you, but if not be sure to look at the different subjects here…the information is quite helpful. Best of luck to you.

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I go for 1st appt 3/15/2019 after completion of treatments in Nov 27. I am so happy who shares their journey.
It is not a journey anyone wants to take.
Thank you. I truly did not ask ??? I just listened & have followed drs orders. I did know what to ask.Because of this place I have & learning
things I did not know.🙏🏻🙏🏻🙏🏻You .
I will be 72 in June…
twist # & I’m just “27”🤗
No family but me among all the billions of people
In this world. Best friends live ou-of-town

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@6750

I go for 1st appt 3/15/2019 after completion of treatments in Nov 27. I am so happy who shares their journey.
It is not a journey anyone wants to take.
Thank you. I truly did not ask ??? I just listened & have followed drs orders. I did know what to ask.Because of this place I have & learning
things I did not know.🙏🏻🙏🏻🙏🏻You .
I will be 72 in June…
twist # & I’m just “27”🤗
No family but me among all the billions of people
In this world. Best friends live ou-of-town

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Doctors will probably suggest aromatase inhibitors or tamoxifen HRT for 5-10 years. You can find information on these under those subjects here.

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@trixie1313

Doctors will probably suggest aromatase inhibitors or tamoxifen HRT for 5-10 years. You can find information on these under those subjects here.

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@trixie1313
oncologist prescribed
1mg Anastrozole. One (1mg) daily Generic for:
Arimidex.
Leaking poop. Scared me. I was going to see dr & saw here it is a side effect. 🙏🏻
1st chemo treatment,Oncologist advised to take Loratadine/antihistamine
10mg. One tab each am & @ BT
to help keep sore joints & my
mussel pain from being so bad. Not often but I do take an ibuprofen if I have been out running here ‘n there all day.
My motto is NO CA TODAY . my gratitude 🙏🏻 to God @ am pm
I do know God knows what is happening in my body and will always be by my side.
FEAR OF THE UNKOWN IS MY
BIG DEAMON. This is why I am trying to learn more about this journey. 🌹Martha

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@6750

@trixie1313
oncologist prescribed
1mg Anastrozole. One (1mg) daily Generic for:
Arimidex.
Leaking poop. Scared me. I was going to see dr & saw here it is a side effect. 🙏🏻
1st chemo treatment,Oncologist advised to take Loratadine/antihistamine
10mg. One tab each am & @ BT
to help keep sore joints & my
mussel pain from being so bad. Not often but I do take an ibuprofen if I have been out running here ‘n there all day.
My motto is NO CA TODAY . my gratitude 🙏🏻 to God @ am pm
I do know God knows what is happening in my body and will always be by my side.
FEAR OF THE UNKOWN IS MY
BIG DEAMON. This is why I am trying to learn more about this journey. 🌹Martha

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Have a good relaxing Sunday. Rest is important too. Just to let you know, I just started Xeloda to prevent recurrence. Well, lately I haven’t been drinking as much water as I should. I snuck in some red meat and I don’t digest it well. Felt constipated. So, I had some rectal bleeding this morning when I went. I must continue with greens and drinking fluids.

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@conniep79

Have a good relaxing Sunday. Rest is important too. Just to let you know, I just started Xeloda to prevent recurrence. Well, lately I haven’t been drinking as much water as I should. I snuck in some red meat and I don’t digest it well. Felt constipated. So, I had some rectal bleeding this morning when I went. I must continue with greens and drinking fluids.

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Thank for Remington me to drink more water. As I read somewhere,
REST IS THE TIDE O HEALING

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@6750

Thank for Remington me to drink more water. As I read somewhere,
REST IS THE TIDE O HEALING

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@ peggie@79
I am praying & thinking positive

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Facing my 1st f/u is messing with my positive thoughts.
One tiny step @ a time is a great accomplishment 🤗

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@6750

Facing my 1st f/u is messing with my positive thoughts.
One tiny step @ a time is a great accomplishment 🤗

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Hi @6750, I want to add my welcome. I think you might be interested in this discussion:
– Concerned about the side effects of anastrozole https://connect.mayoclinic.org/discussion/i-completed-all-treatments-for-breast-cancer-but-now-i-am-supposed/
In particular this part of the discussion where women are talking about frequent bowel movements starting here: https://connect.mayoclinic.org/discussion/arimidex/?pg=2#comment-271152

Staying positive can be a challenge sometimes, especially when going to follow-up appointments. And sometimes it's important to not force yourself to be positive all the time. It's okay to feel what you feel. You may wish to also take part in this discussion:
Help finding a positive attitude https://connect.mayoclinic.org/discussion/help-finding-a-positive-attitude/

I agree one step at a time is an accomplishment, not matter how tiny the step. What questions do you have for your doctor at your follow-up appointment? How can we help you prepare?

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invasive ductal carcinoma left breast stage 2, grade 1. Surgeon concerned about right breast and thought there might be more growth in left. I have 90 minute one way drive to best area to get help-so decided against getting MRI, went ahead with double mastectomy. Post op yesterday she said my instincts were right and that I’m a conundrum. Instead of another lump in left breast I have many tumors so small they would not show on MRI, also in right breast. I could not take anastrazole due to debilitating side affects (I’m 77 with spine degeneration but otherwise good health). My tumor is not following normal staging and they are doing more advanced tests. She recommends radiation on both breasts, then tamoxifen that apparently strengthens bones as well. I live alone and quality and independence are everything to me at this point. I’m concerned about heart and lung damage from 4 weeks of radiation, have same driving distance issues and would have to spend nights in hotel. Im concerned about destroying my white blood cells in the middle of a pandemic. Am just starting researching and will be interviewing 3 radiation oncologists. At the moment, considering the challenges I’m thinking of taking a chance on just the tamoxifen.

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I did 5 weeks of proton beam therapy radiation at Mayo Clinic in Rochester, MN. That type of radiation greatly minimizes any risk to the heart and lungs. You would qualify for housing at the Hope House. Had no side effects from the radiation except some blistering of the skin (like a bad sunburn) and some fatigue towards the end. I have taken tamoxifen for 1 1/2 years and am trying to forge ahead even though I have experienced many of the side effects…hot flashes, anxiety, nausea, constipation and fatigue.

Liked by trixie1313

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@conniep79

Have a good relaxing Sunday. Rest is important too. Just to let you know, I just started Xeloda to prevent recurrence. Well, lately I haven’t been drinking as much water as I should. I snuck in some red meat and I don’t digest it well. Felt constipated. So, I had some rectal bleeding this morning when I went. I must continue with greens and drinking fluids.

Jump to this post

Check the website Forks Over Knives for some wonderful, whole food, plant based recipes. I don't even fancy meat or dairy any more

Liked by trixie1313

REPLY
@terryflys4

invasive ductal carcinoma left breast stage 2, grade 1. Surgeon concerned about right breast and thought there might be more growth in left. I have 90 minute one way drive to best area to get help-so decided against getting MRI, went ahead with double mastectomy. Post op yesterday she said my instincts were right and that I’m a conundrum. Instead of another lump in left breast I have many tumors so small they would not show on MRI, also in right breast. I could not take anastrazole due to debilitating side affects (I’m 77 with spine degeneration but otherwise good health). My tumor is not following normal staging and they are doing more advanced tests. She recommends radiation on both breasts, then tamoxifen that apparently strengthens bones as well. I live alone and quality and independence are everything to me at this point. I’m concerned about heart and lung damage from 4 weeks of radiation, have same driving distance issues and would have to spend nights in hotel. Im concerned about destroying my white blood cells in the middle of a pandemic. Am just starting researching and will be interviewing 3 radiation oncologists. At the moment, considering the challenges I’m thinking of taking a chance on just the tamoxifen.

Jump to this post

my case…DCIS in right breast in 2007 and idc in left breast in 2018…. lumpectomies with radiation both times…tamoxifen the first time…anastrozole the second time. I think I am wondering if you have had bilateral mastectomy, then why do you need radiation at all? In my cases, I was told that the radiation should take care of any cancer cells left in the breast. If you have had both breasts removed, then there should not be a need for radiation. The chances of stray cancer cells is minimal. After genetic testing following the second cancer, I found that I have the CHEK2 genetic mutation. I just had a bilateral mastectomy with reconstruction. I was told that this should prevent me getting BC again. There was damage to both breasts caused by the radiation. Who knows what else has been damaged? I think if I had your history, was 77 and was taking tamoxifen, I would pass on the radiation. My cousin has had bilateral breast cancer with mastectomy both times and has passed on having radiation and is not taking aramatose inhibitors and she has not had a problem. Who knows what is the right thing to do. Everyone is different and every case is different.

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