Intrathecal Pain Pump

FYI---I take Indomethacin for my Arachnoiditis pain. It really helps. Must be taken with food. This drug is part of Dr Tenants protocol.

Archie, I have to think that your Arachnoiditis was caused from your pump or the medicine it delivers. I have seen a number of people who have Arachnoiditis and also have pain pumps. I didn't have Arachnoiditis until after getting my pump. I recently had my pump and intrathecal catheter removed.

What dose of indomethacin does dr tenant recommend?

I take 50 mg.

Hello: I went from Fentanyl to Methadone to Dilaudid. Failed back surgery with third Medtronic Pain Pump. I have lots of burning in right leg, Groin, Hip, Butt down to Foot and Toes. Also going into left leg and toes. They have 3.000 now in third pump with 100 Bolus three a day Dilaudid. They call it Hydromorphon. The burning ing in my right leg and feet are driving me out of my mine. I thought I was better on Methadone but had more stomach upset. The Dilaudid when I take a Bolus puts me asleep. Does the Dilaudid put you to sleep? Plus constipation is terrible. Anyway my burning feels like an open wound with Iodine pored on me. I’m in a world of hurt and don’t know what to do anymore. Thinking of having pump taking out. Don’t know. Does your Bolus put you to sleep.? Thank you for any comments. Jeff

Jeff again. May I ask what your pump is set at per day. You said you were Max Out. Mine is at 3.000 Thank you

I had 7 joint replacements or surgeries of neck posterior, neck anterior, 5 disks lumbar spine, left hip, left knee, and left shoulder and right hip and right knee. I have degenerative, disk disease. It is an arthritis that is very crippling. My mother had the same thing but only had her hips done. In my mother's family 4 siblings were affected with these horrible Irish bones; only one was not. I always thought the arthritis would take me out and not be able to work, but it was sepsis that took me out. Aftermath, brain damage. +

I had my pump implanted just over two years ago after a very successful trial by injection with Dilaudid. They started the pump at the lowest setting. I had numerous increases over the next year with no help. I decided to have the settings decreased so I could have the pump removed. However, I decided to reverse course on the advice of my pain doc. He said that where i had stopped wasn't all that high, so I am in the process of having the output increased again in hopes of getting the relief that I had gotten with the trial(8 down to a 2).

How much pain relief do you get from your pump> And, what drug is in your pump. Hope it continues to help you.

I have a Medtronic pump with Morphine. The pain clinic I go to you have to refill every 3 months. So, the first thing they do is drain the morphine left in the pump which is 50% of the total and then refill it with 20 whatevers and we start again. I know you fear addiction and don't want to increase it, but it's better than pain killers by mouth, where all you do is sleep. They don't give out targeted drug delivery to just anyone, so I suspect your pain is pretty bad. I've had about 4 or 5 bump ups since 2012 and I'm still in the low dose amount. I hope things get better for you.

Thanks for your response. I am not fearful of becoming addicted. I am going back up on my pump’s output. I have had it increased at least seven or eight times over the past two years.
Morphine trial didn’t touch my pain. Hydromorphone dropped the pain way down.
How did the pump affect your pain?