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Intrathecal Pain Pump

Posted by duckski44 @duckski44, Jun 21, 2025

I’ve have an intrathecal pain pump for many years, just trying to connect with others that have this device to chat with people about effectiveness and drug therapies.

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jcoleary | @jcoleary | Feb 24 8:36am
In reply to @laurenseavertson789 "@heisenberg34 I have a trial set up for the pain pump. I have severe Degenerative disc..." + (show)
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@heisenberg34 I have a trial set up for the pain pump. I have severe Degenerative disc disease & I'm fused from C3 thru my sacrum. I was in a wheelchair, for 6 years. I had this fusion, to get me ambulatory. I also now have severe adhesive Arachnoiditis. I have plenty of Oxy 10 mg, but it's not that affective. With all my hardware, it's very difficult to do much of anything. I also need a new shoulder & have torn rotator cuff. I have worked out a great deal, since my 20's I have read so many reviews of success of pain pumps. I'm out of options. I am a young senior, with minimal help. I cannot even get my shoes on. My Back, has ruined my life... I was completely paralyzed from MRSA in my spinal cord. Trying not to get too anxious about the success of the pump. I will be using oral Oxy, even with my pump. It's been a very difficult journey. Very little support from the outside world I also have a supra pubic catheter, from the paralysis. It's a a depressing journey. I am glad you're there, for support. it's very lonely, when i can't go out, or function normally. getting a good pain specialist is difficult Wish you well Support is so helpful. I get many drug resistant UTI's & need IV's There is constant anxiety & constant problems. It's very easy to get discouraged. Wish you well and try not to get discouraged Lauren

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@laurenseavertson789 I have a pain pump as well and been getting medication from it since August 2024. I had great relief for six months but then the stenosis at L2/3 just above my fusion L3-S1 and the deterioration in my SI joint got really bad and I have worse pain again. However, the pump is helping, and I get out during the day. I had placental tissue matrix injections in both sides of my SI joint and that helped for six weeks. I just had my second PTM injections yesterday and am hoping they will build on the first ones since they are regenerative in nature like stem cells. On the pain pump, I was told by my pain doc that taking too much oral opiate can adversely affect the effectiveness of the pain pump. He is ok with 2-4mg/day of Dilaudid though. I used to be on very high doses of opiates and can say that they actually make pain worse when they start wearing off, it is called rebound pain. I scoffed at that for years, but now that I am off those high doses and only take them once/day, my pain is actually better.

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baceman | @baceman | Feb 24 10:02pm

This pump has transformed my life for the better. I was almost bed ridden due to pain from 11 failed back surgeries. I can now walk up right, stand and kneel at church with no pain, play on the floor with my grandson! Whoever invented this, thank you!

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