Intrathecal Pain Pump

Sorry, I cut myself off, I would work with your Dr to get to a higher dose of dilaudid in your pump, a higher dose will make a positive effect to your quality of life, it did for me! Please keep me updated, thx Heisenberg!! Loved that show!!!

It can be so frustrating! Is it all mental? I am sure that my better day after having my pain pump's output increased was not "mental". My foot pain was gone. The pain and fuzziness in the back of my legs was gone. Then, the next day, everything back to "normal". Pain returns as before. Hope you find some relief in your pain journey!

Nah, not all mental at all. But I’ll be damned if I can figure out what makes a good day from a bad. One thing is distraction, but on a bad day? Not so much. I get so very tired of spending all my mental energy on my pain, not to mention plenty of money.

I’m certainly pulling for you!

As I am for you. I am keeping a journal of my pain journey. As you mentioned, I can’t seem to go get my mind off the pain. It consumes almost every waking minute.
Hope you have a restful evening.

Nah, not all mental at all. But I’ll be damned if I can figure out what makes a good day from a bad. One thing is distraction, but on a bad day? Not so much. I get so very tired of spending all my mental energy on my pain, not to mention plenty of money.

I’m certainly pulling for you!

I had my pump implanted just over two years ago after a very successful trial by injection with Dilaudid. They started the pump at the lowest setting. I had numerous increases over the next year with no help. I decided to have the settings decreased so I could have the pump removed. However, I decided to reverse course on the advice of my pain doc. He said that where i had stopped wasn't all that high, so I am in the process of having the output increased again in hopes of getting the relief that I had gotten with the trial(8 down to a 2).

How much pain relief do you get from your pump> And, what drug is in your pump. Hope it continues to help you.

I to have a pump with Morphine being the doctors choice. I had been on oral morphine for at least 10 years and being older wanted relief without worrying about addiction and stomach problems. I too have had many adjustments, but remain lower than the tabs I had taken. I think I really started doing much better when I realized that my back pain was being addressed, which is why I originally wanted this pump. I expected all body pains to being addressed, but that is not the case. It was installed so that the spinal cord is sprayed with the measured amount of morphine, and because the back pain is controlled through the spinal cord, and the pain center, it really helps. Other pain, not back, I handle with 600 mg Tylenol. I hope I didn't sound like I was trying to sound like an expert on these pumps, just trying to say, mine works beautifully.

I to have a pump with Morphine being the doctors choice. I had been on oral morphine for at least 10 years and being older wanted relief without worrying about addiction and stomach problems. I too have had many adjustments, but remain lower than the tabs I had taken. I think I really started doing much better when I realized that my back pain was being addressed, which is why I originally wanted this pump. I expected all body pains to being addressed, but that is not the case. It was installed so that the spinal cord is sprayed with the measured amount of morphine, and because the back pain is controlled through the spinal cord, and the pain center, it really helps. Other pain, not back, I handle with 600 mg Tylenol. I hope I didn't sound like I was trying to sound like an expert on these pumps, just trying to say, mine works beautifully.