@mamadonna63 Same here but my daughter died December 22, 2023 and now I'm all alone. The pump doesn't work at all and my doctor Suelane DoOuro in NYC cut me off all my pain meds that didn't really help but at least it was something. I pray constantly for God to let me come home. I cant bare this satanic pain anymore. I have seen 69 doctors and each and everyone of them had their mind made up not to take me as a patient before they even walked into the exam room and thats the ones that would come in. Many others sent the office manager in to say the doctor doesn't know enough about your rare diseases to take you on as a patient. So I sit on an uncomfortable could 24/7 just waiting to die while my narcissistic mother thinks up ways to torture me even more. I was told I was going to die from Cardiomegely and any stress put on me would kill me quicker causing her to put the worse possible stress she could think of on me just to get rid of me because she has no respect for sick people who cant earn their own money. I would do anything just to get IV Lidocaine. Its the best thing for nerve pain and doesn't make you sleepy or dopey like narcotics do but doctors are even afraid to write a Lidocaine prescription. I actually had doctors say they could careless if I die in the worst pain that exists then turn around and leave the room. What in God's name happened to all these people that they have absolutely no compassion or empathy for anyone. My doctor wanted $2,500 from me to continue writing me prescriptions on top of what she gets from insurance. Its disgusting that they just seem to hate chronic pain patients and the elderly. I have absolutely no life anymore and cant sleep more than an hour, hour and a half every night. I feel like I'm in a nightmare that just won't end. I wish suicide wasn't a sin but I know it is and I know hell is actually worse than the hell were all in already. I pray for each and everyone of us that they realize untreated pain is just as dangerous as pain that is treated. May God have Mercy on us all.