Intracranial hypertension caused motility disorder. Experienced this?

Hi,
I have a very similar problem and I have been dealing with this for 14 years. Anything I ingest causes high blood pressure and extreme glucose readings. These are directly related to the amount ingested. I can eat and drink but am restricted to very little, not enough to live on currently. I'm in the final stage now where food/ fluid backs up into the throat which has caused a blocked throat from bile trying to quel acid burning the throat. I have lost all stamina and have little energy left. The body now diverts all resources to defend it's self against the percieved attack in the digestive system leaving me unable to remain standing. The brain slips into self preservation at will, pulling all resources it can from the body to defend itself.
Autonomic polyneuropathy is well advanced which inhibits the digestion from working, causing gastroparesis. Because it is incurable and untreatable I'm at the end of my journey unless I can force an opperation to fit a J tube for feeding. It is the only solution other than death. I'm urgently seeking the J tube but it is debatable if I will get it in time.
The problem with autonomic polyneuropathy is it deteriorates quicker as it progresses. I figure I might have a month or two left at best without help. So far ED only tries to treat the glucose and BP and not the cause as few know about autonomic polyneuropathy. I have had arguments in ED trying to get them to look at the cause not the symptoms. Three trips in 17 days and still they are blind to the problem. I'm supposed to have gone there tonight but with repeated ignorance there is little point wasting time and resources on side issues if you don't look at the cause.
The J tube bi-passes the stomach and allows for the correct neutrient mix to be feed directly in by pump including any medications required. It will stop the insatiable hunger for the neutriants the body craves, forcing me to eat. It is easy to stop eating when you have neutriant reserves, I have none left and can't get enough in.
The only advice I can give is push to get a resolution as soon as possible. You don't want to end up where I am, fighting this every day and night. I can see the difference in the last month and understand I'm critical but with out help there is nothing I can do but ride it to the end.
Cheers

I am so sorry about your situation,the same thing happened to me 3 trips to the ER they just keep giving me IV with no improvement even with hospitalization,now neuro says my intracranial hypertension cause my motility disorder,I think the Diamox I took for this is the cause,now all my docs abandon me and say go to higher care,going to UCLA Westwood is uphill battle,it’s about referral,cost and coverage,hard to deal with in such a weakened state,nobody going to help us but ourselves,you would think I am a nurse of 29 years I can move myself forward in advocating for myself but it falls in deaf ears with these doctors tied to protocol,unless you’re dying,no help

Hi,
I could self fund the opperation but the on going costs would wipe out any savings. I have a wife to consider before I go down that route. For the moment I'm self funding private consultations to prove the urgent need for a J tube. I have reservations that will move things forward quick enough though. I never thought after 14 years of dealing with this problem that it would suddenly turn pear shaped in the last 6 months as it has. I understand there is little anyone can do but an urgent referal is something that can be done, or emergency surgery to delete the threat of termination every day.
Thankfully, I'm particularly strong willed and will not stop pushing all I can. I have a fested interest in myself.
Cheers