Severe COPD and Interstitial Lung Disease
I was diagnosed several years ago with COPD after 40+ years of smoking. In the subsequent years we have learned I have 4 or 5 interstitial diseases including Interstitial Lung Disease. The two have been about equal but recent testing showed the interstitial is much worse than the COPD. I would love to know if anyone else has this problem and what the effects of the interstitial side are. I have been on O2 for years but just recently I have gotten so bad that I can barely pull 91% while sitting and on my home concentrator. I had always been able to pull 90% without the oxygen. That's how much worse it's gotten and walking is almost impossible. Everytime I get up & walk around I drop down to 80%, even while on oxygen. It's getting harder & harder just to breathe. Would love to hear any comments or advice.
Interested in more discussions like this? Go to the Lung Health Support Group.
Connect
Not actually a COPD patient but, IPF
-
Like -
Helpful -
Hug
1 ReactionHello Colleen- Hello @wendy4122- Wendy- do you want to talk about your COPD? I have it too.
@wendy4122- Here is a video that you might find helpful:
My pulmonologist has noted that my lungs have thick form of mucus that restricts my lungs from operating at peak performance. I tried Musinex and it was instrumental in removing the loose mucus on the surface of my lungs but it never addressed the heavy mucus underneath the surface mucus.
My question is: Is there a product that addresses this thick mucus and either dissolves or reduces it?
As of now I'm on several prescription drugs designed to slow down the damage in my lungs. I'm convinced that BIG PHARMA will have a cure for this in about 20 to 30 year but I don't have that time frame left.
Thanks
Ray Cote