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lilcountry
@lilcountry

Posts: 3
Joined: Jul 15, 2018

Infundibulum or aneurysm?

Posted by @lilcountry, Sun, Jul 15 5:56pm

Hi. So last week, my neurologist gave me the results of my MRI and MRA and said they have found what is either an infundibulum or an aneurysm, they can’t be sure which without doing a cerebral angiogram. It’s over 3mm in size. I originally went to him because I had been having “spells” as we had been calling them, where I seemed to zone out, almost like a seizure but without shaking, a non epileptic seizure if you will. He insists this has no bearing on it and seems to think those are triggered only by stress. He also showed me numerous white “spots” all over the MRI which he said were probably just from my migraines. A friend of mine had the same white “spots” on hers and her doctor did not brush it off as migraines. I’ve never had any problems like this before, and to be honest I am scared. Should I get a second opinion? Any advice would be appreciated.

REPLY

Hi @lilcountry, welcome to Connect. It is certainly understandable why you would be scared. Either one of these diagnoses would be a lot to digest and it is OK to feel nervous about either. You may find the following discussion worth your time to read through, https://connect.mayoclinic.org/discussion/infundibulum-in-my-brain/. @lilcountry, if you don't mind sharing, what course of action did your current provider recommend moving forward with this diagnosis?

@JustinMcClanahan

Hi @lilcountry, welcome to Connect. It is certainly understandable why you would be scared. Either one of these diagnoses would be a lot to digest and it is OK to feel nervous about either. You may find the following discussion worth your time to read through, https://connect.mayoclinic.org/discussion/infundibulum-in-my-brain/. @lilcountry, if you don't mind sharing, what course of action did your current provider recommend moving forward with this diagnosis?

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He is scheduling a cerebral angiogram coming up to determine if it is an infundibulum or an aneurysm. He said if it’s an infundibulum he would leave it alone, and if it’s an aneurysm, he would see what kind it was and determine what to do after he sees it. He increased the dosage of my topamax for preventative medication for migraines and told me to keep going with esgic as needed for when migraines became too much to bear. As for the “spells” he really had no answer except maybe it was stress related.

Hello @lilcountry

It sounds as if your doctor is being thorough in his follow up. You stated in your post above, "I’ve never had any problems like this before, and to be honest I am scared. Should I get a second opinion?"

Please know that it is always your right to get a second opinion. The second opinion would best come from a large university medical center (where there are a lot of specialists who consult and work as a team) or research-oriented hospital such as a Mayo Clinic facility (there are three, in Minnesota, Florida and Arizona).

Please keep in touch, I look forward to hearing how this problem is being resolved and what you are doing to reduce your anxiety about this diagnosis.

Teresa

@hopeful33250

Hello @lilcountry

It sounds as if your doctor is being thorough in his follow up. You stated in your post above, "I’ve never had any problems like this before, and to be honest I am scared. Should I get a second opinion?"

Please know that it is always your right to get a second opinion. The second opinion would best come from a large university medical center (where there are a lot of specialists who consult and work as a team) or research-oriented hospital such as a Mayo Clinic facility (there are three, in Minnesota, Florida and Arizona).

Please keep in touch, I look forward to hearing how this problem is being resolved and what you are doing to reduce your anxiety about this diagnosis.

Teresa

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I will definitely keep in touch! I am hoping they find an answer for it all. I’ve just never had to see a neurologist before and when he mentioned having to “poke around in my peanut” as we are calling it now, it has me a bit rattled. Thank you for the advice, just not sure if I should bother with a large university center or if I am overreacting here.

Hello @lilcountry

In my opinion (and I am not a medical professional – just a patient like yourself and other Members on Connect) you are never over reacting if you choose to get a second opinion, especially if you get it from a research oriented facility. There have been many times that I have trusted what I've been told by doctors and have not reached out for that second opinion and later found that my reluctance worked against me. So, if your follow up with your current doctor still leaves you with doubts or questions – go for that second opinion.

Please keep in touch, I look forward to hearing from you again.

Teresa

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