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Looking for info and treatment for Mycobacterium abscessus
Hi Gang!
I have been on this forum for a while, being diagnosed with Bronchiectasis and mycobacterium Avium complex.
(MAC). Have been on treatment for Mac since June 2022 and attained culture conversion in November 2022 with plan of continuing the big three until the end of the year - if still clear at that point. Yesterday I got a curveball on a random sputum test that I did in August. That says I am still clear for Mac but now have mycobacterium abscess. I have an appointment with pulmonologist at UNC on Friday, September 29 luckily. However, I need some experienced advice/truth regarding treatment, success rate, the bottom line of how this is a game changer for me. Quite frankly, I am sick of researching this disease and
It’s effects on my physical health, emotional health, peace…
Thanks
Dee
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After 18 months on big 3 was pronounced clear of Mac but now have been diagnosed with mycobacterium abscessus. Consultant wants to admit me to hospital for intravenous treatment. I’m very anxious about this. Anyone been through this?
How many cultures have grown M Abscessus? Some years ago I had one culture comeback positive for it, but the next two came back clear.
Is the consultant a specialist in Mycobateria infections?
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2 ReactionsHi Sue. Apparently the abscessus has been consistently showing up in my samples and also in broncoscopy so my consultant feels it needs treated. I’m from N Ireland and I was referred to my consultant as she is the NTM authority here. Thanks for your reply.
@sueinmn who is this doctor and where does he practice. Thank you. VIcki Leopold
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1 ReactionWho is this doctor and where does he practice?
@vickihhh Dr Charles Daley at National Jewish Health.