Inactive bladder with NO elasticity remaining

Posted by jdbjsmith @jdbjsmith, Nov 26, 2023

Does anyone have a diagnosis of an inactive bladder (completely stretched out) with no elasticity left in it??

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cavman9 | @cavman9 | Jan 19 3:25pm

In reply to @jdbjsmith "Are you male or female?" + (show)

Man

nicky6969 | @nicky6969 | Jan 20 7:07am

I am a Healthy 65 male with no medications - exercise daily and eat right. It was mentioned that Dr Wyler may be doing something others are not. Can someone explain what he does to stimulate the bladder? I visited U Penn and the findings were "do a TURP and put in some sort of stimulator" with no guarantees it will work. Then there are the possible side effects of TURP (sexual) .... has anyone had success with this? Are there any new procedures?

crowescott | @crowescott | Jan 21 11:25am

I was recently diagnosed with the same situation; similarly, an overstretched and "dead bladder" with no cure. I feel like my life has abruptly taken a severe downturn. I saved to be able to travel, but I self cath at least 10 times a day--seemingly much more than others--and I can't take that many catheters without risk of loss. And the cost for what Medicare doesn't cover is about $500 a month. This situation has also imperiled my mental health inasmuch as I was previously spoiled; a very heathy person. How do you fellow suffers deal with this? I have trouble coming to acceptance. Thanks. Tom

nicky6969 | @nicky6969 | Jan 22 7:08am

In reply to @crowescott "I was recently diagnosed with the same situation; similarly, an overstretched and "dead bladder" with no..." + (show)

I self Cath but not nearly 10 times a day....(seems like a lot) I average 5 times a day - maybe more if I have a few beers. The art of self cath is not so much an issue as ensuring you have enough wherever you go. I too struggle with that and wish there was another alternative. I know my bladder was somewhat weak going into the Urolift operation but I still do not understand why it completely fell asleep. I'm looking for some new method to try to knick it into somewhat of a gear so I don't have to rely on 100% cath. I heard acupuncture but not sure....anyone out there able to get their bladder to work after they said its "dead" .... something to stimulate the nerves?

crowescott | @crowescott | Jan 22 2:19pm

In reply to @nicky6969 "I self Cath but not nearly 10 times a day....(seems like a lot) I average 5..." + (show)

Thank you for your comments. Yes, anxiety over not having catheters always at hand. A big risk if traveling with the frequency of lost baggage. I haven’t completely given up, but it’s tough, as you know. Tom.

unvecchiouomo | @unvecchiouomo | Jan 23 2:18pm

Yes, I have een self cathing now for roughly five years. Each and every time I do, I get pissed off (pun intended). I am not sure if anything could have been done when I was first diagnosed with a distended bladder, but a cystoscopy performed by a quack urologist (IMO) ultimately inflated my already weak bladder to the point that it is no longer functional. Now I am cathing 4-5 times daily. And yes, traveling and cathing away from home is inconvenient and frustrating since the use of urinals is no longer an option for me.

crowescott | @crowescott | Jan 25 11:47am

In reply to @unvecchiouomo "Yes, I have een self cathing now for roughly five years. Each and every time I..." + (show)

I share your concerns and frustration. I had a history of IC and about a year before my bladder stopped working, I had a hydrodistension under general anesthesia. In hindsight, that seems inappropriate. Hard not to be depressed 24 x 7. Tom.

jdbjsmith | @jdbjsmith | Feb 3 2:28pm

In reply to @cavman9 "Yes I am I interested! I self cath 4 times daily, had trouble with UTI’s, but..." + (show)

Latest update: I no longer have to cath (maybe once in awhile). My prostate was very enlarged, Dr Kevin Wymer at MAYO in Manchester did a HoLEP procedure. My bladder still does not function. However, I'm able to void and completely empty my bladder. I know this doesn't seem possible, I'm giving God the total glory, because in reality I shouldn't be able to pee. If your situation is similar, I suggest getting a referral from your primary physician to MAYO!! Wishing you the very best!