in desperate need for help and hope

Hey

I’ve been suffering from UARS (Upper Airway Resistance Syndrome), which is a form of sleep apnea, for the past two years. However, about a year ago, I underwent a lot of dental work that I believe triggered what I suspect is Oromandibular Dystonia (OMD). my symptoms are constant tightness in my jaw and tongue, with my tongue sitting abnormally inside my mouth and pressing against my palate. This leads to a choking sensation because of the abnormal positioning and tension in my tongue.

Since then, my UARS symptoms have worsened drastically, to the point where I’ve become bedbound and completely non-functional. The issue is, I’m struggling to get a diagnosis for OMD because my symptoms aren’t visibly obvious, when i took stimulant med they became visble but still I fear that I’ll be gaslit by doctors, as I’ve had this experience many times before.

I’m also finding it difficult to get doctors to acknowledge the severity of my UARS, even though it’s leaving me sleep deprived and zombie without the ability to function (at it current severity since omd started) I’ve tried nasal sprays with some success, but they haven’t provided lasting relief.

What adds to my frustration is that even if I manage to get a diagnosis for OMD, the correlation between OMD and UARS isn’t something that is well known, so I feel extremely stuck. It seems llogical that if my jaw and tongue muscles arent working propely it could affect breathing and thefore sleep breathing

at this point i feel extremely hopeless and depressed, im writing this currently while im having a flare in my suffering and i feel like i havent slept in two days and suffer massively, its unberable and i cant see how can i get help. thats all i had to say and sorry if i wrote bad as i said im very tired.